CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14821 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty recognize others scale

The scale for difficulty recognizing others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15345 Imaging new periventricular lesion count

Total number of new focal T2-hyperintense brain lesions that are in contact with the ventricular system

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C15381 Imaging Gadolinium-enhancing lesion total volume measurement

Total volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C10814 Parents biologically related indicator

The indicator whether the subject's/participant's parents are biologically related

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16127 CNS other demyelinating disorder name

Name of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14789 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - worry scale

The scale for worrying based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C11997 Timed 25-Foot Walk (T25FW) - trial 1 not completed reason

Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Multiple Sclerosis Multiple Sclerosis
C16189 Vaccine hospitalization indicator

Indicates whether participant/subject was hospitalized due to serious complications from vaccine

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Multiple Sclerosis Multiple Sclerosis
C16137 Symptoms initial category type

The body system or other categories describing where initial symptoms were present

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14797 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty face reaction scale

The scale for difficulty face reaction from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C15646 Imaging posterior fossa lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C17446 Clinical event or milestone walk indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of walking by 17 months old which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C07097 Center for Epidemiologic Studies-Depression Scale (CES-D) - everything effort indicator

Indicates how often the subject felt that everything he/she did was an effort in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C53899 Stroop Color and Word Test (SCW) - Word T score

Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C19049 CNS other demyelinating disorder other text

The free-text field related to 'CNS other demyelinating disorder type' specifying other text. Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14805 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty night driving scale

The scale of difficulty in driving at night based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C19000 Imaging Gadolinium-enhancing lesion technique other text

The free-text field related to 'Imaging Gadolinium-enhancing lesion technique type' specifying other text. Method used to determine the lesions for gadolinium (Gd)-enhancing lesions on T1+Gd image

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C19052 State or province of residence other text

The free-text field related to 'State or province of residence text' specifying other text. Abbreviation for the state or province where the participant/subject currently lives

Supplemental Demographics Multiple Sclerosis Multiple Sclerosis
C16102 Symptom new or worsening greater than 24 hours indicator

Indicates whether any new or worsening symptoms have occurred lasting more than 24 hours that may signal a new episode or progression of multiple sclerosis

Supplemental Relapse Multiple Sclerosis Multiple Sclerosis
C07105 Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator

Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C53951 Stroop Color and Word Test (SCW) - Color word T score

Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14697 Berg Balance Scale (BBS) - transfer scale

The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
Displaying 276 - 300 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.