CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C08001 Family history relative type biological sample in repository indicator

Indicator of whether the participant's family member has donated biological sample(s) to a repository

 Supplemental Genetics False Multiple Sclerosis Multiple Sclerosis
C16149 Biological parent twin type

Type of twin the biological parent has

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15407 Imaging ventricular volume measurement

Volume measurement of the ventricles

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C17451 MS aunt diagnosis total count

The total number of aunts that were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C15430 Imaging volume technique reference text

Name of software package used, website, and/or a citation to a journal article referencing the particular technique used to find brain volume

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16172 Pregnant current indicator

Indicator of whether the participant is currently pregnant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C15368 Imaging estimated glomerular filtration rate (eGFR) performed date and time

Date and time (if applicable) estimated glomerular filtration rate (eGFR) performed

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C19025 Imaging tissue integrity measure technique other text

The free-text field related to 'Imaging tissue integrity measure technique type' specifying other text. Type of imaging sequence used

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16117 Protocol defined qualifying relapse indicator

If applicable, is this a protocol defined qualifying relapse according to the definition set in the study protocol

 Supplemental Relapse False Multiple Sclerosis Multiple Sclerosis
C11916 Modified Fatigue Impact Scale (MFIS) - less motivate social activity score

Scale for having been less motivated to participate in social activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C15447 Imaging change in cortical thickness value

Change in cortical thickness

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C14822 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty outdoor activity scale

The scale for difficulty outdoor activity from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15350 Imaging new juxtacortical lesion count

Total number of new focal T2-hyperintense brain lesions that are in contact with the cortex (with no intervening white matter)

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Multiple Sclerosis Multiple Sclerosis
C15383 Imaging Gadolinium-enhancing lesion change in volume measurement

Change in volume of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14144 Family history assessment date

Date family history was collected from the participant/ subject, family member/friend, and/or the medical record

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C16128 CNS other demyelinating disorder type

Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C14790 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - pain scale

The scale for pain based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
Displaying 251 - 275 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.