CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15330	Imaging clinical visit type	The type of clinical visit coinciding with scan	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C15358	Imaging gadolinium administered in window indicator	The indicator for whether gadolinium was administered in the protocol window	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C16100	Symptoms new or worsening neurologic indicator	Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms	Supplemental-Highly Recommended	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C15321	Imaging T2W brain lesion volume measurement	Total volume of all focal T2-hyperintense brain lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15328	Imaging T2 lesion volume change measurement	Absolute or percent change in T2 lesion volume as compared to a reference scan acquired at an earlier timepoint	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15337	New enlarging T2 lesion count	The number of new or enlarging non-enhancing T2 lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15378	Imaging new Gadolinium-enhancing lesion count	Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15403	Imaging change in brain volume value	Absolute or percent change in whole brain parenchymal volume as compared to a reference scan acquired at an earlier timepoint	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15647	Imaging elapsed time from injection to post-Gd T1-weighted sequence value	Delay in time from injection to start of post-gadolinium (Gd) T1-weighted sequence in minutes	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C15405	Imaging brain volume fraction value	Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
C15451	Imaging change in hippocampus volume value	Change in hippocampus volume	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C16107	Symptom associated with new neurologic findings indicator	Indicates whether the symptom(s) are associated with new neurologic findings	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C14824	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty entertain scale	The scale for difficulty finding something on crowded shelf from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
C15363	Imaging new cortical lesion count	Total number of new lesions located in the brain cortex or lesions in the subcortical WM also involving the cortex	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C14706	Berg Balance Scale (BBS) - scale total score	The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
C14144	Family history assessment date	Date family history was collected from the participant/ subject, family member/friend, and/or the medical record	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C15389	Imaging combined unique active (CUA) lesion number compared to previous timepoint value	Number of combined unique active (CUA) lesions compared to previous time-point	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C11998	Timed 25-Foot Walk (T25FW) - trial 2 duration	The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
C14792	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty hobbies scale	The scale of difficult in hobbies based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.