CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1733
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15337 New enlarging T2 lesion count

The number of new or enlarging non-enhancing T2 lesions

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15378 Imaging new Gadolinium-enhancing lesion count

Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Multiple Sclerosis Multiple Sclerosis
C15403 Imaging change in brain volume value

Absolute or percent change in whole brain parenchymal volume as compared to a reference scan acquired at an earlier timepoint

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15405 Imaging brain volume fraction value

Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Social Status Multiple Sclerosis Multiple Sclerosis
C15647 Imaging elapsed time from injection to post-Gd T1-weighted sequence value

Delay in time from injection to start of post-gadolinium (Gd) T1-weighted sequence in minutes

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C02400 Brain volumetric analysis measurement

Measured brain volume in cubic centimeters

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15330 Imaging clinical visit type

The type of clinical visit coinciding with scan

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15358 Imaging gadolinium administered in window indicator

The indicator for whether gadolinium was administered in the protocol window

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C15321 Imaging T2W brain lesion volume measurement

Total volume of all focal T2-hyperintense brain lesions

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C16100 Symptoms new or worsening neurologic indicator

Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms

Supplemental-Highly Recommended Relapse Multiple Sclerosis Multiple Sclerosis
C15328 Imaging T2 lesion volume change measurement

Absolute or percent change in T2 lesion volume as compared to a reference scan acquired at an earlier timepoint

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C51169 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Symbolic working memory level B item score

Score for the selected Symbolic Working Memory Level B Item, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Multiple Sclerosis Multiple Sclerosis
C53005 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay percent correct percentile value

Value related to the percent correct percentile of the code substitution - delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Multiple Sclerosis Multiple Sclerosis
C55910 California Verbal Learning Test - Second Edition (CVLT-II) - Long delay free recall start time

Time at the start of the long delay free recall portion, as part of California Verbal Learning Test- Second Edition (CVLT-II)

Supplemental California Verbal Learning Test - Second Edition (CVLT-II) Multiple Sclerosis Multiple Sclerosis
C51004 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - General recognition subtest scaled score total value

Total value of scaled scores for all recognition subtests, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Multiple Sclerosis Multiple Sclerosis
C52739 Woodcock Johnson III (WJ-III) - Math fluency end time

End time of math fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Multiple Sclerosis Multiple Sclerosis
C51677 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 1:1 Imitate mark or scribble observation text

Text describing the observations made on the subject's imitated mark or scribble sketch for the age norm of 1 year and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Multiple Sclerosis Multiple Sclerosis
C55868 Test of Memory and Learning, Second Edition (TOMAL-2) - Digits Backward (DB) scaled score

The subject's scaled score on the Digits Backward (DB) verbal subtest, as part of the Test of Memory and Learning, Second Edition(TOMAL-2)

Supplemental Test of Memory and Learning Revised (TOMAL-2) Multiple Sclerosis Multiple Sclerosis
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Multiple Sclerosis Multiple Sclerosis
C53924 California Verbal Learning Test Childrens version (CVLT-C) - List B item semantic cluster score

List B item semantic clustering score, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a trial/list raw score

Supplemental California Verbal Learning Test - Children (CVLT-C) Multiple Sclerosis Multiple Sclerosis
C15646 Imaging posterior fossa lesion count

Total number of focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C14801 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - driving indicator

The indicator for currently driving from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C17446 Clinical event or milestone walk indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of walking by 17 months old which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
Displaying 1 - 25 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.