CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1292-C15403	C15403	Imaging change in brain volume value	Absolute or percent change in whole brain parenchymal volume as compared to a reference scan acquired at an earlier timepoint	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15405	C15405	Imaging brain volume fraction value	Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15647	C15647	Imaging elapsed time from injection to post-Gd T1-weighted sequence value	Delay in time from injection to start of post-gadolinium (Gd) T1-weighted sequence in minutes	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15321	C15321	Imaging T2W brain lesion volume measurement	Total volume of all focal T2-hyperintense brain lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15330	C15330	Imaging clinical visit type	The type of clinical visit coinciding with scan	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15328	C15328	Imaging T2 lesion volume change measurement	Absolute or percent change in T2 lesion volume as compared to a reference scan acquired at an earlier timepoint	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15358	C15358	Imaging gadolinium administered in window indicator	The indicator for whether gadolinium was administered in the protocol window	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16100	C16100	Symptoms new or worsening neurologic indicator	Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms	Supplemental-Highly Recommended	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15337	C15337	New enlarging T2 lesion count	The number of new or enlarging non-enhancing T2 lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15378	C15378	Imaging new Gadolinium-enhancing lesion count	Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53899	C53899	Stroop Color and Word Test (SCW) - Word T score	Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1284-C19049	C19049	CNS other demyelinating disorder other text	The free-text field related to 'CNS other demyelinating disorder type' specifying other text. Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14805	C14805	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty night driving scale	The scale of difficulty in driving at night based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19000	C19000	Imaging Gadolinium-enhancing lesion technique other text	The free-text field related to 'Imaging Gadolinium-enhancing lesion technique type' specifying other text. Method used to determine the lesions for gadolinium (Gd)-enhancing lesions on T1+Gd image	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C19052	C19052	State or province of residence other text	The free-text field related to 'State or province of residence text' specifying other text. Abbreviation for the state or province where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16102	C16102	Symptom new or worsening greater than 24 hours indicator	Indicates whether any new or worsening symptoms have occurred lasting more than 24 hours that may signal a new episode or progression of multiple sclerosis	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07105	C07105	Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator	Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53951	C53951	Stroop Color and Word Test (SCW) - Color word T score	Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1285-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14813	C14813	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - increase dependence others scale	The scale for increased dependence on others from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16116	C16116	Symptom end date	The last or final date (and time, if applicable and known) when a symptom was present	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F2746-C11915	C11915	Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score	Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.