CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C15478	Imaging gray matter lesion technique type	Method used to determine the number of lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15445	Imaging cortical thickness measurement	Thickness of cerebral cortex measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C15393	Imaging T1 hypointense lesion count	Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C14710	Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Multiple Sclerosis	Multiple Sclerosis
C15515	Imaging tissue integrity whole brain measurement indicator	Whether measurements of the tissue integrity of the whole brain were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C11922	Modified Fatigue Impact Scale (MFIS) - physical uncomfort score	Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
C16152	Sibling adopted before age one indicator	Indicates whether participant/subject has any adopted siblings who were adopted before one year of age	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C15466	Imaging tissue integrity region type	The areas of the brain where tissue integrity is measured	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15409	Imaging change in ventricular volume value	Absolute change in ventricular volume as compared to a reference scan acquired at an earlier timepoint	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C16167	Given birth or fathered a child indicator	Indicates whether participant/subject has ever given birth or fathered a child	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
C11930	Modified Fatigue Impact Scale (MFIS) - physical sub score	Sum of MFIS Physical items (range: 0-36)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
C17454	MS sibling diagnosis indicator	The indicator of whether a sibling was diagnosed with Multiple Sclerosis	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C15367	Imaging cortical lesion count	Total number of lesions located in the brain cortex or lesions in the subcortical WM also involving the cortex	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C15423	Imaging gray matter lesion count	Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C01582	Height unit of measure	Unit of measure for the height numerical value for subject/participant	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
C16175	Menstrual period last date	Date of the participant's/subject's last menstrual period	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C17828	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Multiple Sclerosis	Multiple Sclerosis
C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C15396	Imaging T1 hypointense lesion total volume measurement	Total volume of all focal T1-hypointense brain lesions (on this scan)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
C16198	Biological sample in repository consent form signed indicator	Indicates whether the participant/subject provided signed informed consent for the biological sample collection and storage in a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
C08076	Breastfed indicator	Indicator of whether the participant/subject was breastfed by his/her mother	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 176 - 200 of 612

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.