CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 76 - 100 of 1733
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15373 Imaging retinal nerve fiber layer thickness in inferior quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the inferior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15333 Optical coherence tomography (OCT) oculus dexter (OD) macula volume measurement

Total macula volume of the right eye

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15417 Imaging change in gray matter volume value

Absolute change in gray matter volume as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C59005 Imaging spinal cord lesion slice thickness measurement

Value of the thickness of the slice measured in millimeters (mm)

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS).

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C15506 Imaging spinal cord volume/cross-sectional area slice thickness measurement

Thickness of the spinal cord volume/cross-sectional area optical slice

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15376 Imaging other unspecified lesion count

Total number of other lesions whose type is not specified

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15316 Optical coherence tomography (OCT) macular cube scan pattern type

The scan pattern used for the optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C15432 Imaging change in white matter volume value

Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C52339 Subject initial text

The free-text field related to the initials of the subject.

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15352 Imaging average macular cube thickness measurement

Average macular thickness of the cube

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s).

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15462 Imaging spinal cord volume value

Volume of the spinal cord

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15341 Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement

Total macula volume of the left eye

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15370 Imaging oculus dexter (OD) refraction value

The refraction of the right eye (OD)

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15457 Imaging spinal cord lesion count

Total number of lesions located at any level of the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
Displaying 76 - 100 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.