CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 501 - 525 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Genetics Multiple Sclerosis Multiple Sclerosis
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C15423 Imaging gray matter lesion count

Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15645 Imaging new thalamus lesion count

Total number of new lesions located in the thalami

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C08081 Twin sibling type

Type of twin the participant/subject has

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C15446 Imaging ventricular volume technique type

Image analysis method used to calculate ventricular volume

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16151 Child adopted before age one indicator

Indicates whether participant/subject has any adopted children who were adopted before one year of age

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C14806 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty driving bad weather scale

The scale of difficulty in driving bad weather based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C19001 Imaging T1 hypointense lesion technique other text

The free-text field related to 'Imaging T1 hypointense lesion technique type' specifying other text. Method used to determine the total number of T1 hypointense lesions

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16165 Hormonal therapy stop date/time

The date and time (if applicable and known) the participant stopped hormonal therapy

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C17453 MS relative description text

The free-text field for describing the relationship of relative with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C14814 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - other assist scale

The scale for other assistance based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
C16126 Acute disseminated encephalomyelitis (ADEM) characteristics type

The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19025 Imaging tissue integrity measure technique other text

The free-text field related to 'Imaging tissue integrity measure technique type' specifying other text. Type of imaging sequence used

Supplemental Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C16174 Menopause indicator

Indicates whether participant is currently menopausal

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C16188 Vaccine received indicator

Indicates whether participant/subject received the vaccine

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C19051 Parents biologically related other text

The free-text field related to 'Parents biologically related type' specifying other text. Type of relation of the biologically related parents

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C11916 Modified Fatigue Impact Scale (MFIS) - less motivate social activity score

Scale for having been less motivated to participate in social activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C15447 Imaging change in cortical thickness value

Change in cortical thickness

Supplemental Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C14822 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty outdoor activity scale

The scale for difficulty outdoor activity from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) Multiple Sclerosis Multiple Sclerosis
Displaying 501 - 525 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.