CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 51 - 75 of 1733
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C17402 Site name

The name of the site for the study

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15343 Optical coherence tomography (OCT) total macular volume abnormal status

This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT).

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C15440 Imaging timepoint for change in normal appearing white matter value

Timepoint used to calculate change in normal-appearing white matter

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15371 Imaging new other unspecified lesion count

Total number of other new lesions whose type is not specified

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15344 Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator

The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed.

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15326 Optical coherence tomography high contrast visual acuity count

The number of letters read correctly at 3.2 meters as a measurement of high contrast tomography (OCT) visual acuity

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C19007 Imaging spinal cord lesion technique other text

The free-text field related to 'Imaging spinal cord lesion technique type' specifying other text. Method used to determine the number of lesions located in the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C15317 Optical coherence tomography retinal nerve fiber layer analysis performed type

The type of retinal nerve fiber layer (RNFL) analysis performed on the optical coherence tomography (OCT) scan

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15495 Imaging other regional volumetric gap value

Gap on the other regional volumetric image optical slice

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15369 Imaging retinal nerve fiber layer thickness in nasal quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the nasal quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15373 Imaging retinal nerve fiber layer thickness in inferior quadrant abnormal status

This variable signifies whether the average retinal nerve fiber layer (RNFL) thickness of the inferior quadrant of the eye is thin compared to the rest of the population

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15427 Imaging change in gray matter lesion volume value

Change in volume of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C19247 Subject ID

Subject identification ID

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15457 Imaging spinal cord lesion count

Total number of lesions located at any level of the spinal cord

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15349 Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator

The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15334 Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C19008 Imaging spinal cord volume/cross-sectional area technique other text

The free-text field related to 'Imaging spinal cord volume/cross-sectional area technique type' specifying other text. Method used to determine the cord cross-sectional area or volume as a measure of cord atrophy

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C15324 Optical coherence tomography difference in average overall retinal nerve fiber layer thickness measurement

The difference in average overall retinal nerve fiber layer (RNFL) thickness (oculus dexter;OD-oculus sinister;OS)

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15498 Imaging spinal cord lesion technique type

Method used to determine the number of lesions located in the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
Displaying 51 - 75 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.