CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C15470 Imaging magnetization transfer ratio (MTR) result value

The magnetization transfer ratio (MTR) result

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C01541 Weight measurement

Measurement of participant's weight

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C15396 Imaging T1 hypointense lesion total volume measurement

Total volume of all focal T1-hypointense brain lesions (on this scan)

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C14795 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty stair climbing scale

The scale for difficulty stair climbing from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15517 Imaging tissue integrity normal appearing gray matter measurement indicator

Whether measurements of the tissue integrity of normal appearing gray matter were taken

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C16162 Tobacco days smoked in past 30 days count

Number of days during PAST 30 DAYS that participant/subject smoked a cigarette

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Multiple Sclerosis Multiple Sclerosis
C15413 Imaging change in ventricular volume fraction value

Percent change in ventricular volume fraction as compared to a reference scan acquired at an earlier timepoint

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C16147 Family history relative death cause text

Cause of death of the participant/subject's relative, if applicable

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14803 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - not driving reason

The reason giving up driving based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C10981 Birth control method type

The participant's method of birth control

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Multiple Sclerosis Multiple Sclerosis
C16206 Family history gender type

Reported gender of the relative. Gender is the socially constructed identity of sex

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14811 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - frustrated scale

The scale for frustration based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C16170 Menstrual period occurrence indicator

Indicates whether participant has ever had a menstrual period

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C11913 Modified Fatigue Impact Scale (MFIS) - forgetful score

Scale for having been forgetful as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Multiple Sclerosis Multiple Sclerosis
C15442 Imaging central cerebral volume measurement

Central cerebral volume measurement

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C17458 MS first cousin diagnosis indicator

The indicator of whether any first cousins were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C14819 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty bill accuracy scale

The scale for difficulty determining bill accuracy, from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C16178 Post-menopausal cause type

Type of cause or reason for the post-menopausal period in the participant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

 Supplemental Behavioral History False Multiple Sclerosis Multiple Sclerosis
C14827 National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - irritability scale

The scale for irritability based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)

 Supplemental National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25) False Multiple Sclerosis Multiple Sclerosis
C15375 Imaging Gadolinium-enhancing lesion count

Total number of all focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
Displaying 376 - 400 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.