CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1305-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15478	C15478	Imaging gray matter lesion technique type	Method used to determine the number of lesions	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C11992	C11992	Timed 25-Foot Walk (T25FW) - unilateral assistance device type	Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15393	C15393	Imaging T1 hypointense lesion count	Hypointense lesion number on T1 without antecedent T1-hypointensity on adequate prior MRI scan	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16132	C16132	MS first onset type	Disposition of first onset of event of multiple sclerosis (MS)	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14793	C14793	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - difficulty nearsightedness crowd scale	The scale for difficulty nearsightedness for crowded shelf, from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15515	C15515	Imaging tissue integrity whole brain measurement indicator	Whether measurements of the tissue integrity of the whole brain were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C12001	C12001	Timed 25-Foot Walk (T25FW) - more than two attempts indicator	Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C17442	C17442	Clinical event or milestone day care indicator	Whether the participant/subject achieved or experienced the specific clinical event or milestone of attending a day care group (with > 5 other children) which is pertinent to the disease or disorder	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07093	C07093	Center for Epidemiologic Studies-Depression Scale (CES-D) - blues family friend indicator	Indicates how often the subject felt like not able to shake off blues even with help from family and friends in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1292-C15409	C15409	Imaging change in ventricular volume value	Absolute change in ventricular volume as compared to a reference scan acquired at an earlier timepoint	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16141	C16141	Observation method of localization region type	Observation method used in listed regions	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14801	C14801	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - driving indicator	The indicator for currently driving from the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07101	C07101	Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator	Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53903	C53903	Stroop Color and Word Test (SCW) - Color T score	Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1292-C15423	C15423	Imaging gray matter lesion count	Total number of brain lesions located in the gray matter or lesions in the subcortical white matter also involving the gray matter	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C59004	C59004	Relapsing NMO spectrum disorder type	Type of relapsing Neuromyelitis Optica (NMO) spectrum disorder the participant/subject is experiencing	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14809	C14809	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - function scale	The scale of for difficulty function based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C19004	C19004	Imaging magnetization transfer ratio (MTR) measurement other text	The free-text field related to 'Imaging magnetization transfer ratio (MTR) measurement type' specifying other text. Magnetization transfer ratio measure	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C00222	C00222	Job classification category	Category that classifies work performed by participant/subject	Supplemental	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16106	C16106	MS relapse onset within the last 7 days indicator	Indicates whether onset of relapse was within the last 7 days	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F0372-C07109	C07109	Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator	Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15442	C15442	Imaging central cerebral volume measurement	Central cerebral volume measurement	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.