CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1733
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14772 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - health worry variety scale

The scale related to proportion of time feeling encumbered by health problems based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

 Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) True Multiple Sclerosis Multiple Sclerosis
C55963 California Verbal Learning Test - Second Edition (CVLT-II) - Short delay free recall trial discriminability score

Recall discriminability score for short delay trials, as part of California Verbal Learning Test- Second Edition (CVLT-II)

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Multiple Sclerosis Multiple Sclerosis
C51050 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Sound symbol retention raw score

Raw score for sound symbol retention, being the difference between the sound symbol trial 4 raw score and the sound symbol delay recall raw score, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C51723 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 9:6 observation text

Text describing the observations made on the subject's sketch for the age norm of 9 years and 6 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Multiple Sclerosis Multiple Sclerosis
C58715 Relative biological sample registry placement location

The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known)

 Supplemental Genetics False Multiple Sclerosis Multiple Sclerosis
C14732 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - general scale

The description self-reported by the participant/subject to indicated their overall quality of health based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

 Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) True Multiple Sclerosis Multiple Sclerosis
C15413 Imaging change in ventricular volume fraction value

Percent change in ventricular volume fraction as compared to a reference scan acquired at an earlier timepoint

 Supplemental Imaging Analysis Results - Follow Up False Multiple Sclerosis Multiple Sclerosis
C17450 MS first cousin diagnosis total count

The total number of first cousins that were diagnosed with Multiple Sclerosis

 Supplemental Family History - Affected Relatives and Pedigree False Multiple Sclerosis Multiple Sclerosis
C19047 Neuromyelitis Optica (NMO) spectrum disorder other text

The free-text field related to 'Neuromyelitis Optica (NMO) spectrum disorder type' specifying other text. Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject

 Supplemental Diagnosis and Disease Characteristics False Multiple Sclerosis Multiple Sclerosis
C16204 State or province of residence text

Abbreviation for the state or province where the participant/subject currently lives

 Supplemental Demographics False Multiple Sclerosis Multiple Sclerosis
C52971 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score procedural reaction time percent correct score

Score related to the percent correct score of the procedural reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Multiple Sclerosis Multiple Sclerosis
C52657 Woodcock Johnson III (WJ-III) - Activity level status

Status level of test subject's level of activity as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Multiple Sclerosis Multiple Sclerosis
C51098 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Sound symbol trial 4 normal percentile category

Normalized percentile rank category for the raw score for sound symbol trial 4, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C54211 Woodcock Johnson III (WJ-III) - Story recall delayed story three points count

Count of the number of correct test subject responses from story recall - delayed story 3 test as part of the Woodcock Johnson III (WJ-III) tests of achievement

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Multiple Sclerosis Multiple Sclerosis
C20472 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition hits percentage value

Percentile for Recognition Hits portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) True Multiple Sclerosis Multiple Sclerosis
C50933 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story B dad dream recognition score

Score for the participant's recognition of what the girl's dad thought about her dream in Story B - Fishing Story, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C51223 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal learning verbal learning scaled score difference prevalence scale

Prevalence scale of the difference between the verbal learning scaled score and the verbal learning recognition scaled score, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C14780 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - orgasm scale

The scale related to orgasm difficulty based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

 Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) True Multiple Sclerosis Multiple Sclerosis
C55974 California Verbal Learning Test - Second Edition (CVLT-II) - Forced choice recognition hit standard score

Standard score for forced choice recognition hits of the long delay trial, as part of the California Verbal Learning Test (CVLT-II)

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Multiple Sclerosis Multiple Sclerosis
C51058 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story gist total scaled score

Scaled score for the raw story gist total score, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C51731 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 12:8 observation text

Text describing the observations made on the subject's sketch for the age norm of 12 years and 8 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Multiple Sclerosis Multiple Sclerosis
C50893 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Design memory scoring criteria card 4 total score

Total score for presence of scoring criteria items on Design Memory Response Form Card 4, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Multiple Sclerosis Multiple Sclerosis
C15362 Imaging QA/QC performed indicator

Was image-based QA/QC performed?

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C14740 Multiple Sclerosis Quality of Life Scale (MSQOL-54) - walking greater than one mile scale

The scale related to health limit walk one mile based on Multiple Sclerosis Quality of Life Scale (MSQOL-54)

 Supplemental Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54) True Multiple Sclerosis Multiple Sclerosis
C55924 California Verbal Learning Test - Second Edition (CVLT - II) - Immediate free recall correct response total raw score

Total number of correct words recited by the subject for immediate free recall trials 1-5, calculated as s the sum of correct responses on the five presentations, as part of California Verbal Learning Test- Second Edition (CVLT-II)

 Supplemental California Verbal Learning Test - Second Edition (CVLT-II) True Multiple Sclerosis Multiple Sclerosis
Displaying 301 - 325 of 1733

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.