CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15326 Optical coherence tomography high contrast visual acuity count

The number of letters read correctly at 3.2 meters as a measurement of high contrast tomography (OCT) visual acuity

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Multiple Sclerosis Multiple Sclerosis
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15343 Optical coherence tomography (OCT) total macular volume abnormal status

This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT)

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
C18589 Imaging spinal cord area value

Area of the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C57040 Fatigue diary activity type

Type of activity entered in the Fatigue Diary

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15324 Optical coherence tomography difference in average overall retinal nerve fiber layer thickness measurement

The difference in average overall retinal nerve fiber layer (RNFL) thickness (oculus dexter;OD-oculus sinister;OS)

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15462 Imaging spinal cord volume value

Volume of the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15418 Imaging gray matter volume fraction value

Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15374 Imaging retinal nerve fiber layer thickness in inferior quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the inferior quadrant

Exploratory Imaging OCT Analysis - RNFL Thickness Analysis Multiple Sclerosis Multiple Sclerosis
C15440 Imaging timepoint for change in normal appearing white matter value

Timepoint used to calculate change in normal-appearing white matter

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15341 Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement

Total macula volume of the left eye

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C15349 Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator

The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed

Exploratory Imaging Optical Coherence Tomography (OCT) Information Multiple Sclerosis Multiple Sclerosis
C15371 Imaging new other unspecified lesion count

Total number of other new lesions whose type is not specified

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15490 Imaging regional brain volume technique type

Image analysis method used to calculate other regional volume or regional volume fractions

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15377 Imaging retinal nerve fiber layer thickness in temporal quadrant measurement

The retinal nerve fiber layer (RNFL) thickness of the temporal quadrant

Exploratory Imaging OCT Analysis - Spectralis Report Analysis Multiple Sclerosis Multiple Sclerosis
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C15334 Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count

The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters

Exploratory Imaging OCT Analysis - Contrast and Visual Acuity Multiple Sclerosis Multiple Sclerosis
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C15352 Imaging average macular cube thickness measurement

Average macular thickness of the cube

Exploratory Imaging OCT Analysis -Cirrus Macular Thickness Multiple Sclerosis Multiple Sclerosis
Displaying 26 - 50 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.