CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
C16120	MS current disease course type	Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C05404	Symptom onset date and time	Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
C08007	Diagnosis first given date and time	Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Core	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
C17457	MS family medical history indicator	The indicator for family having medical history of Multiple Sclerosis	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16118	MS current diagnosis type	The current Multiple Sclerosis (MS) diagnosis of the participant/subject	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Core	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
C16119	MS onset course type	Type of onset experienced by participant/subject diagnosed with MS	Core	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
C15418	Imaging gray matter volume fraction value	Volume of gray matter in the brain or ratio of gray matter volume to total intracranial volume or other head-size normalization volume	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
C15316	Optical coherence tomography (OCT) macular cube scan pattern type	The scan pattern used for the optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
C15432	Imaging change in white matter volume value	Absolute change in white matter volume as compared to a reference scan acquired at an earlier timepoint	Exploratory	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.