CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Multiple Sclerosis Multiple Sclerosis
C17457 MS family medical history indicator

The indicator for family having medical history of Multiple Sclerosis

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C05404 Symptom onset date and time

Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Multiple Sclerosis Multiple Sclerosis
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Multiple Sclerosis Multiple Sclerosis
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Core Medical History Multiple Sclerosis Multiple Sclerosis
C16118 MS current diagnosis type

The current Multiple Sclerosis (MS) diagnosis of the participant/subject

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Multiple Sclerosis Multiple Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Multiple Sclerosis Multiple Sclerosis
C16119 MS onset course type

Type of onset experienced by participant/subject diagnosed with MS

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History Multiple Sclerosis Multiple Sclerosis
C16120 MS current disease course type

Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Multiple Sclerosis Multiple Sclerosis
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Multiple Sclerosis Multiple Sclerosis
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Multiple Sclerosis Multiple Sclerosis
C18589 Imaging spinal cord area value

Area of the spinal cord

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C15438 Imaging change in normal appearing white matter value

Change in tissue integrity in normal-appearing white matter as compared to a reference scan acquired at an earlier timepoint

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Multiple Sclerosis Multiple Sclerosis
Displaying 1 - 25 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.