CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Multiple Sclerosis Multiple Sclerosis
C16170 Menstrual period occurrence indicator

Indicates whether participant has ever had a menstrual period

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C16170 Menstrual period occurrence indicator

Indicates whether participant has ever had a menstrual period

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C16175 Menstrual period last date

Date of the participant's last menstrual period

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C16171 Menstrual period first occurrence age value

Youngest age the participant had a menstrual period, otherwise known as the age of menarche

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C16171 Menstrual period first occurrence age value

Youngest age the participant had a menstrual period, otherwise known as the age of menarche

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C16174 Menopause indicator

Indicates whether participant is currently menopausal

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History Multiple Sclerosis Multiple Sclerosis
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Multiple Sclerosis Multiple Sclerosis
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Multiple Sclerosis Multiple Sclerosis
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Multiple Sclerosis Multiple Sclerosis
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Multiple Sclerosis Multiple Sclerosis
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Multiple Sclerosis Multiple Sclerosis
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Multiple Sclerosis Multiple Sclerosis
C16140 Localization region indicator

The presence or absence of symptoms experienced by the participant/subject in specific localization regions

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16139 Localization region anatomic site

Regions of possible onset of clinical event experience by participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C00222 Job classification category

Category that classifies work performed by participant/subject

Supplemental Social Status Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15431 Imaging white matter volume measurement

Volume of white matter in the brain

Exploratory Imaging Analysis Technique and Results - Baseline Multiple Sclerosis Multiple Sclerosis
C15434 Imaging white matter volume fraction value

Ratio of white matter volume to total intracranial volume or other head-size normalization volume

Exploratory Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.