CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 501 - 525 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16186 Education performance status

Participant/subject's cognitive status with regards to education

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Behavioral History Multiple Sclerosis Multiple Sclerosis
C14707 Disease Steps Scale

The scale to describe disease steps

Supplemental Disease Steps (DS) Multiple Sclerosis Multiple Sclerosis
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C08147 Data source

Source of the data provided on the case report form

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Exploratory Fatigue/Activity Record and Diary Multiple Sclerosis Multiple Sclerosis
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Supplemental Demographics Multiple Sclerosis Multiple Sclerosis
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Supplemental Demographics Multiple Sclerosis Multiple Sclerosis
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Stroop Test Multiple Sclerosis Multiple Sclerosis
C16128 CNS other demyelinating disorder type

Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19049 CNS other demyelinating disorder other text

The free-text field related to 'CNS other demyelinating disorder type' specifying other text. Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16127 CNS other demyelinating disorder name

Name of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C17446 Clinical event or milestone walk indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of walking by 17 months old which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C17442 Clinical event or milestone day care indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of attending a day care group (with > 5 other children) which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C17441 Clinical event or milestone cognitive learning disability indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of having a cognitive/learning disability which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C17445 Clinical event or milestone 3 year sentence indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in complete sentences by 3 years which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C17444 Clinical event or milestone 2 year word combination indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking in two word combinations by 2 years which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C17443 Clinical event or milestone 1 year speech indicator

Whether the participant/subject achieved or experienced the specific clinical event or milestone of speaking his/her first words by 12 months which is pertinent to the disease or disorder

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C16131 Clinical event occurrence range

Timeframe of when clinical event occurred

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C10980 Childbearing potential indicator

Indicator of whether the participant is of childbearing potential

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C16151 Child adopted before age one indicator

Indicates whether participant/subject has any adopted children who were adopted before one year of age

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16191 Chicken pox infection age value

The age value of participant/subject when they experienced a natural infection of chicken pox

Supplemental Pediatric Developmental History Multiple Sclerosis Multiple Sclerosis
C07105 Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator

Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
C07095 Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator

Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Multiple Sclerosis Multiple Sclerosis
Displaying 501 - 525 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.