CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 476 - 500 of 612

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2848-C57039	C57039	Fatigue diary day indicator	Indication of Day (also broken down further into hours) within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57040	C57040	Fatigue diary activity type	Type of activity entered in the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16153	C16153	Family history relative type with MS number	For the specified relative type, the total number of relatives diagnosed with multiple sclerosis (MS)	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16147	C16147	Family history relative death cause text	Cause of death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16145	C16145	Family history relative birth date	The date of birth of a related family members to the participant/subject	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16146	C16146	Family history relative age at death value	Age at death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16206	C16206	Family history gender type	Reported gender of the relative. Gender is the socially constructed identity of sex	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C14144	C14144	Family history assessment date	Date family history was collected from the participant/ subject, family member/friend, and/or the medical record	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C17447	C17447	Event description text	The free-text field to describe the event	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1274-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	Social Status	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C00018	C00018	Education service type	Type of educational services received	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 476 - 500 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.