CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 612
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19003 Imaging brain volume fraction technique other text

The free-text field related to 'Imaging brain volume fraction technique type' specifying other text. Image analysis method used to calculate whole brain volume fraction

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15491 Imaging brain measured structure type

The structure of the brain volume measurement

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C19006 Imaging brain measured structure other text

The free-text field related to 'Imaging brain measured structure type' specifying other text. The structure of the brain volume measurement

 Exploratory Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15650 Imaging basal ganglia lesion count

Total number of lesions located in the basal ganglia (excluding the thalamus)

 Supplemental Imaging Analysis Technique and Results - Baseline False Multiple Sclerosis Multiple Sclerosis
C15353 Imaging average retinal nerve fiber layer thickness abnormal scale

This variable signifies whether the average overall retinal nerve fiber layer (RNFL) thickness of the eye is thin compared to the rest of the population

 Exploratory Imaging OCT Analysis - RNFL Thickness Analysis False Multiple Sclerosis Multiple Sclerosis
C15359 Imaging average macular thickness abnormal status

The indicator is the average macular thickness is abnormally low

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C15352 Imaging average macular cube thickness measurement

Average macular thickness of the cube

 Exploratory Imaging OCT Analysis -Cirrus Macular Thickness False Multiple Sclerosis Multiple Sclerosis
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C10842 Imaging analysis software name

Name of the software used for data processing or analysis of the imaging study

 Supplemental Magnetic Resonance Imaging (MRI) False Multiple Sclerosis Multiple Sclerosis
C16180 Hormone-related syndrome indicator

Indicator of whether the participant has known hormone-related/endocrine syndromes or disorders

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16176 Hormone therapy indicator

Indicates whether participant/subject has taken hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16165 Hormonal therapy stop date/time

The date and time (if applicable and known) the participant stopped hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C16164 Hormonal therapy start date/time

The date and time (if applicable and known) the participant started hormonal therapy

 Supplemental Reproductive and Hormonal History False Multiple Sclerosis Multiple Sclerosis
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Multiple Sclerosis Multiple Sclerosis
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C01522 Height measurement

Measurement of participant's height

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Vital Signs False Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Supplemental Physical Exam False Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Exploratory Grip Strength Fatigue False Multiple Sclerosis Multiple Sclerosis
Displaying 426 - 450 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.