CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1273-C10677	C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F2846-C57036	C57036	Visual analog severity scale	Scale related to the severity of fatigue being experienced currently	Exploratory	Fatigue Visual Analog Scale	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16187	C16187	Vaccine type	Vaccination received by pediatric patient	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16188	C16188	Vaccine received indicator	Indicates whether participant/subject received the vaccine	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16189	C16189	Vaccine hospitalization indicator	Indicates whether participant/subject was hospitalized due to serious complications from vaccine	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16192	C16192	Vaccination within one month of demyelinating attack indicator	Whether or not the participant/subject received a vaccination within one month of his/her first demyelinating attack	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C08080	C08080	Twin sibling indicator	Indicator of whether the participant/subject has a twin brother or sister	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F2799-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Exploratory	Grip Strength Fatigue	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16134	C16134	Treatment for clinical event type	Type of treatment participant/subject received for clinical event	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16133	C16133	Treatment for clinical event indicator	Indicates whether the participant/subject received treatment for the clinical event	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C16160	C16160	Tobacco smoked 100 cigarettes indicator	Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00719	C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C16162	C16162	Tobacco days smoked in past 30 days count	Number of days during PAST 30 DAYS that participant/subject smoked a cigarette	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1277-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
F1027-C11992	C11992	Timed 25-Foot Walk (T25FW) - unilateral assistance device type	Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.