CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 526 - 550 of 612

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1279-C16168	C16168	Pregnancy self or contribute sperm number	Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16172	C16172	Pregnant current indicator	Indicator of whether the participant is currently pregnant	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C59003	C59003	Progressive multiple sclerosis status	The status of the participant/subjects disease course of progressive Multiple Sclerosis (MS)	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16117	C16117	Protocol defined qualifying relapse indicator	If applicable, is this a protocol defined qualifying relapse according to the definition set in the study protocol	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C59004	C59004	Relapsing NMO spectrum disorder type	Type of relapsing Neuromyelitis Optica (NMO) spectrum disorder the participant/subject is experiencing	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C59002	C59002	Relapsing remitting multiple sclerosis status	The status of the participant/subjects disease course of relapsing remitting multiple sclerosis (MS)	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C58715	C58715	Relative biological sample registry placement location	The location where the relative's DNA sample resides, if known. (Indicate "N/A" if location is not known)	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1286-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16152	C16152	Sibling adopted before age one indicator	Indicates whether participant/subject has any adopted siblings who were adopted before one year of age	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C08085	C08085	Sibling alive indicator	Indicator of whether the participant's/subject's sibling is still living	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C17402	C17402	Site name	The name of the site for the study	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C58716	C58716	Specific system relapse type	The specific system(s) involved in the relapse	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C19052	C19052	State or province of residence other text	The free-text field related to 'State or province of residence text' specifying other text. Abbreviation for the state or province where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C16204	C16204	State or province of residence text	Abbreviation for the state or province where the participant/subject currently lives	Supplemental	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C53901	C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53902	C53902	Stroop Color and Word Test (SCW) - Color residual score	Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53903	C53903	Stroop Color and Word Test (SCW) - Color T score	Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53905	C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53904	C53904	Stroop Color and Word Test (SCW) - Color word raw score	Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53906	C53906	Stroop Color and Word Test (SCW) - Color word residual score	Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F2370-C53951	C53951	Stroop Color and Word Test (SCW) - Color word T score	Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis

Displaying 526 - 550 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.