CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 501 - 525 of 612

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1297-C15324	C15324	Optical coherence tomography difference in average overall retinal nerve fiber layer thickness measurement	The difference in average overall retinal nerve fiber layer (RNFL) thickness (oculus dexter;OD-oculus sinister;OS)	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15326	C15326	Optical coherence tomography high contrast visual acuity count	The number of letters read correctly at 3.2 meters as a measurement of high contrast tomography (OCT) visual acuity	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15342	C15342	Optical coherence tomography low contrast Sloan letter chart 1.25 binocular count	The number of letters read correctly at low contrast on a Sloan letter chart at 1.25% at 2 meters	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15334	C15334	Optical coherence tomography low contrast Sloan letter chart 2.5 binocular count	The number of letters read correctly at low contrast on a Sloan letter chart at 2.5% from 2 meters	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15348	C15348	Optical coherence tomography Pelli-Robson contrast sensitivity test log score value	The log score of the Pelli-Robson Contrast Sensitivity Test	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15317	C15317	Optical coherence tomography retinal nerve fiber layer analysis performed type	The type of retinal nerve fiber layer (RNFL) analysis performed on the optical coherence tomography (OCT) scan	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15340	C15340	Optical coherence tomography retinal nerve fiber layer signal strength value	Signal strength of optical coherence tomography (OCT) scan when acquiring retinal nerve fiber layer (RNFL) thickness data of the right eye (1-10)	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15332	C15332	Optical coherence tomography retinal nerve fiber layer thickness laterality type	The side of the eyes examined during retinal nerve fiber layer (RNFL) thickness analysis by optical coherence tomography (OCT)	Supplemental	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15332	C15332	Optical coherence tomography retinal nerve fiber layer thickness laterality type	The side of the eyes examined during retinal nerve fiber layer (RNFL) thickness analysis by optical coherence tomography (OCT)	Supplemental	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C10814	C10814	Parents biologically related indicator	The indicator whether the subject's/participant's parents are biologically related	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C19051	C19051	Parents biologically related other text	The free-text field related to 'Parents biologically related type' specifying other text. Type of relation of the biologically related parents	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16143	C16143	Parents biologically related type	Type of relation of the biologically related parents	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C17733	C17733	Person completing form name	Name of person completing the form	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1285-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1285-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16178	C16178	Post-menopausal cause type	Type of cause or reason for the post-menopausal period in the participant	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16179	C16179	Post-menopausal surgery date/time	The date and time (if applicable and known) of the surgery that induced the post-menopausal period	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16193	C16193	Pregnancy outcome date/time	The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16169	C16169	Pregnancy outcome type	Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 501 - 525 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.