CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 51 - 75 of 1733

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14835	Activities specific Balance Confidence Scale (ABC-Scale) - walk stairs scale	Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking up or down stairs	Supplemental	Activities Specific Balance Confidence Scale (ABC-Scale)	True	Multiple Sclerosis	Multiple Sclerosis
C14841	Activities specific Balance Confidence Scale (ABC-Scale) - walk to car scale	Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking outside of the house to a car parked in the driveway	Supplemental	Activities Specific Balance Confidence Scale (ABC-Scale)	True	Multiple Sclerosis	Multiple Sclerosis
C16126	Acute disseminated encephalomyelitis (ADEM) characteristics type	The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C19048	Acute disseminated encephalomyelitis (ADEM) clinical course other text	The free-text field related to 'Acute disseminated encephalomyelitis (ADEM) clinical course type' specifying other text. The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16125	Acute disseminated encephalomyelitis (ADEM) clinical course type	The diagnosed type of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16123	Acute myelitis segment anatomic site	The anatomic site(s) of segments in the vertebral column involved in acute myelitis	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
C16150	Adopted age value	Age at time of adoption if participant/subject was adopted	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C10813	Adopted indicator	Whether the subject/participant was adopted	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Test of Memory and Learning Revised (TOMAL-2)	True	Multiple Sclerosis	Multiple Sclerosis
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	California Verbal Learning Test - Second Edition (CVLT-II)	True	Multiple Sclerosis	Multiple Sclerosis
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Multiple Sclerosis	Multiple Sclerosis
C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Test of Memory and Learning Revised (TOMAL-2)	True	Multiple Sclerosis	Multiple Sclerosis
C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)	True	Multiple Sclerosis	Multiple Sclerosis
C52938	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution correct count	Count related to the correct code substitution composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Multiple Sclerosis	Multiple Sclerosis
C52998	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay correct count	Count related to correct code substitution - delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Multiple Sclerosis	Multiple Sclerosis
C53007	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay correct count standard deviation reaction time score	Score related to the standard deviation reaction time score of the code substitution - delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.