CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 476 - 500 of 612

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1343-C14818	C14818	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - use difficulty reading scale	The scale for difficulty reading based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1343-C14789	C14789	National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25) - worry scale	The scale for worrying based on the National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25)	Supplemental	National Eye Institute 25 Item Visual Functioning Questionnaire (NEI-VFQ-25)	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C19047	C19047	Neuromyelitis Optica (NMO) spectrum disorder other text	The free-text field related to 'Neuromyelitis Optica (NMO) spectrum disorder type' specifying other text. Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16122	C16122	Neuromyelitis Optica (NMO) spectrum disorder sub-disease type	Details of the Neuromyelitis Optica (NMO) spectrum disorder selected experienced by the participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16121	C16121	Neuromyelitis Optica (NMO) spectrum disorder type	Type of Neuromyelitis Optica (NMO) spectrum disorder experienced by participant/subject	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15337	C15337	New enlarging T2 lesion count	The number of new or enlarging non-enhancing T2 lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16141	C16141	Observation method of localization region type	Observation method used in listed regions	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15354	C15354	Optical coherence tomography (OCT) assisted reproduction technology (ART) mean value	The number of B-scan images (frames) averaged assisted reproduction technology (ART)	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15344	C15344	Optical coherence tomography (OCT) Cirrus-Zeiss performed indicator	The indicator for whether the spectral-domain optical coherence tomography (OCT) (Cirrus - Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15355	C15355	Optical coherence tomography (OCT) ganglion cell layer thickness performed indicator	The indicator for whether ganglion cell layer thickness (segmentation) optical coherence tomography (OCT) (Cirrus-Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15323	C15323	Optical coherence tomography (OCT) macular cube laterality type	The side of the eyes examined during macular cube analysis by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15316	C15316	Optical coherence tomography (OCT) macular cube scan pattern type	The scan pattern used for the optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15331	C15331	Optical coherence tomography (OCT) macular cube signal strength value	Signal strength of optical coherence tomography (OCT) machine when scanning macula of eye (1-10)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15339	C15339	Optical coherence tomography (OCT) macular cube total volume measurement	Total volume of the macular cube by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15333	C15333	Optical coherence tomography (OCT) oculus dexter (OD) macula volume measurement	Total macula volume of the right eye	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1298-C15341	C15341	Optical coherence tomography (OCT) oculus sinister (OS) macula volume measurement	Total macula volume of the left eye	Exploratory	Imaging OCT Analysis - Spectralis Report Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15320	C15320	Optical coherence tomography (OCT) retinal thickness laterality type	The side of the eyes examined during retinal thickness analysis by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15327	C15327	Optical coherence tomography (OCT) signal strength value	Signal strength of optical coherence tomography (OCT) machine when scanning macula of eye (1-10)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15349	C15349	Optical coherence tomography (OCT) Spectralis-Heidelberg performed indicator	The indicator for spectral-domain optical coherence tomography (OCT) (Spectralis-Heidelberg) being performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15336	C15336	Optical coherence tomography (OCT) time-domain performed indicator	The indicator for whether the time-domain optical coherence tomography (OCT) (Stratus - Zeiss) was performed	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15335	C15335	Optical coherence tomography (OCT) total macula volume measurement	Total macula volume by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
F1295-C15343	C15343	Optical coherence tomography (OCT) total macular volume abnormal status	This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis -Cirrus Macular Thickness	False	Multiple Sclerosis	Multiple Sclerosis
F1296-C15343	C15343	Optical coherence tomography (OCT) total macular volume abnormal status	This variable indicates whether the macular volume is abnormally low based on optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Stratus Retinal Thickness Report	False	Multiple Sclerosis	Multiple Sclerosis
F1297-C15347	C15347	Optical coherence tomography average retinal nerve fiber layer thickness measurement	Average overall retinal nerve fiber layer (RNFL) thickness	Exploratory	Imaging OCT Analysis - RNFL Thickness Analysis	False	Multiple Sclerosis	Multiple Sclerosis
F1294-C15319	C15319	Optical coherence tomography contrast and visual acuity testing laterality type	The eye examined during high/low contrast and visual acuity testing by optical coherence tomography (OCT)	Exploratory	Imaging OCT Analysis - Contrast and Visual Acuity	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 476 - 500 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.