CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1282-C16116	C16116	Symptom end date	The last or final date (and time, if applicable and known) when a symptom was present	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16110	C16110	Symptom associated with new neurologic findings ongoing indicator	Indicates whether the symptom(s) associated with new neurologic findings are ongoing	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16109	C16109	System deficit type indicator	Indicates whether the symptom(s)/deficit was present in the system	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16107	C16107	Symptom associated with new neurologic findings indicator	Indicates whether the symptom(s) are associated with new neurologic findings	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16106	C16106	MS relapse onset within the last 7 days indicator	Indicates whether onset of relapse was within the last 7 days	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16105	C16105	MS relapse onset within the last 24 hours indicator	Indicates whether onset of relapse was within the last 24 hours	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16104	C16104	MS symptoms stable or improving indicator	Indicates whether prior to the onset of this event, the participant's/subject's Multiple Sclerosis (MS) symptoms were stable or improving over the last 30 days	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16103	C16103	Fever due to intercurrent illness indicator	Indicates whether the participant/subject has fever due to intercurrent illness	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16102	C16102	Symptom new or worsening greater than 24 hours indicator	Indicates whether any new or worsening symptoms have occurred lasting more than 24 hours that may signal a new episode or progression of multiple sclerosis	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16100	C16100	Symptoms new or worsening neurologic indicator	Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms	Supplemental-Highly Recommended	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16008	C16008	Birth control indicator	Indicates if participant uses birth control	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Multiple Sclerosis	Multiple Sclerosis
F1291-C15652	C15652	Imaging tissue integrity measure technique type	Type of imaging sequence used	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15651	C15651	Imaging estimated glomerular filtration rate (eGFR) result value	Estimated glomerular filtration rate (eGFR) result in mg/dL	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15650	C15650	Imaging basal ganglia lesion count	Total number of lesions located in the basal ganglia (excluding the thalamus)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15648	C15648	Imaging oculus sinister (OS) refraction value	The refraction of the left eye (OS)	Exploratory	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15647	C15647	Imaging elapsed time from injection to post-Gd T1-weighted sequence value	Delay in time from injection to start of post-gadolinium (Gd) T1-weighted sequence in minutes	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15646	C15646	Imaging posterior fossa lesion count	Total number of focal T2-hyperintense brain lesions that are in contact with the posterior fossa (brainstem or cerebellum)	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1292-C15645	C15645	Imaging new thalamus lesion count	Total number of new lesions located in the thalami	Supplemental	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
F1290-C15644	C15644	Imaging QA/QC result	Results of image-based QA/QC	Supplemental	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
F1293-C15644	C15644	Imaging QA/QC result	Results of image-based QA/QC	Supplemental	Imaging Optical Coherence Tomography (OCT) Information	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15518	C15518	Imaging tissue integrity other regional measurements indicator	Whether measurements of the tissue integrity of other brain regions were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15517	C15517	Imaging tissue integrity normal appearing gray matter measurement indicator	Whether measurements of the tissue integrity of normal appearing gray matter were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15516	C15516	Imaging tissue integrity normal appearing white matter measurement indicator	Whether measurements of the tissue integrity of normal appearing white matter were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis
F1291-C15515	C15515	Imaging tissue integrity whole brain measurement indicator	Whether measurements of the tissue integrity of the whole brain were taken	Supplemental	Imaging Analysis Technique and Results - Baseline	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 176 - 200 of 612

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.