CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60337 Mitochondrial disease genetic tests pancreas result text

The free-text field related to the participant's genetic test results

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60338 Mitochondrial disease fecal elastase test indicator

Indicator of whether the participant had fecal elastase testing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60339 Mitochondrial disease fecal elastase test result status

Status to the participant's fecal elastase test result status

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60340 Mitochondrial disease pancreatic enzyme replacement therapy indicator

Indicator of whether the participant had pancreatic enzyme replacement therapy indicator

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60341 Mitochondrial disease chronic pain medication pancreatitis indicator

Indicator of whether the participant is taking chronic pain medication for pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59706 Blood pressure cuff size unit of measure

The unit of measure for the blood pressure cuff size

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59709 Blood pressure cuff size value

Size of the blood pressure cuff used to measure the participant's blood pressure

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59710 Temperature unit agnostic value

Measurement of the participant's body temperature

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59711 Temperature measurement anatomic site other text

The free-text field related to 'Temperature measurement anatomic site' specifying other text.

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60342 Triceps skinfold thickness value

Value of the triceps skinfold (back side middle upper arm) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60343 Subscapular skinfold thickness value

Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59716 Medication steroid mouth current indicator

Indicator of whether the participant is taking any oral steroids by mouth

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59717 Medication steroid inhaler current indicator

Indicator of whether the participant is taking any steroids by inhaler

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59718 Medication steroid IV current indicator

Indicator of whether the participant is taking any steroids by IV

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59719 Medication seizure current indicator

Indicator of whether the participant is taking any seizure medications

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59720 Medication oral contraceptive current indicator

Indicator of whether the participant is currently taking oral contraceptives

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59721 Medication estrogen current indicator

Indicator of whether the participant is currently taking any estrogen forms (pill, patch, cream, other)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59722 Medication depo-provera current indicator

Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59723 Medication other progesterone current indicator

Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59724 Medication testosterone HCG current indicator

Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
Displaying 901 - 925 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.