CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3091-C60243	C60243	Biomarker leukocyte assessment type other text	The free-text field related to 'Biomarker leukocyte assessment type', specifying other text. Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60244	C60244	Biomarker lymphoblast assessment type other text	The free-text field related to 'Biomarker lymphoblast assessment type', specifying other text. Type of biomarker(s) assessed from lymphoblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60245	C60245	Biomarker muscle biochemistry assessment type other text	The free-text field related to 'Biomarker muscle biochemistry assessment type', specifying other text. Type of biomarker(s) assessed from muscle biochemistry	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60246	C60246	Biomarker muscle histology assessment type other text	The free-text field related to 'Biomarker muscle histology assessment type', specifying other text. Type of biomarker(s) assessed from muscle histology	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60247	C60247	Biomarker genetic assessment type other text	The free-text field related to 'Biomarker genetic assessment type', specifying other text. Types of genetic biomarker(s) from the specimen that were evaluated	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60248	C60248	Biomarker specimen other source text	Free-text field specifying the other biomarker(s) assessed from specimen sources	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C57974	C57974	Laboratory procedure random glucose measurement	Measurement of the amount of glucose in the participant's blood at a random/non-fasting time	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C60249	C60249	Laboratory procedure anti-pancreatic autoantibody name	Name of the anti-pancreatic autoantibody measured in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60271	C60271	Mitochondrial disease DNA deletion text	The free-text field to specify the mitochondrial disease mitochondrial DNA deletion	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60272	C60272	Informant questionnaire text	The free-text field specifying the informant for the questionnaire	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60273	C60273	Mitochondrial disease infant formula choose reason text	The free-text field to specify the reason an infant formula was chosen	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60274	C60274	Mitochondrial disease infant formula recommendation type	Type of recommendation the participant received regarding the infant formula	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60275	C60275	Mitochondrial disease infant formula recommendation type other text	The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60276	C60276	Mitochondrial disease prior special diet type	Type of specialized diet the participant has been on in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60277	C60277	Mitochondrial disease stop diet reason text	The free-text field to specify why the participant stopped their dietary restriction	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60278	C60278	Mitochondrial disease prior special diet affect symptom text	The free-text field to specify whether the prior specialized diet affected participant's symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60279	C60279	Mitochondrial disease vomit characteristic type	Type of characteristics the participant experiences when vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60280	C60280	Mitochondrial disease prior vomit fail stop text	The free-text field related to the participant's previous efforts that failed to stop vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60281	C60281	Mitochondrial disease abdominal migraine diagnosis indicator	Indicator of whether the participant has an abdominal migraine diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60282	C60282	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type other text	The free-text field related to 'Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type', specifying other text. Type of frequency with which the participant currently has GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60283	C60283	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn meal timing interval	Interval of the timing of the participant's current GERD, heartburn, mid-line chest pain, esophageal burning in relation to meals	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60284	C60284	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn trigger text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60285	C60285	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn relief text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom relief	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60286	C60286	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn season variation text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom seasonal variation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.