CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C59713	C59713	Hospitalization diabetes diagnosis indicator	Indicator of whether the participant was hospitalized at the time the diabetes was diagnosed	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59743	C59743	Genetic test diabetes indicator	Indicator related to whether the participant had genetic testing related to diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59744	C59744	Genetic test diabetes result text	Free-text field related to the results of diabetes genetic testing	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59745	C59745	BMI diabetes diagnosis category	Category of the participant's BMI (body mass index) at the time of diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59746	C59746	Glycosylated hemoglobin diabetes diagnosis value	Value of glycosylated hemoglobin (A1C) at diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59747	C59747	Glycosylated hemoglobin measure method type	Type of method used to measure glycosylated hemoglobin (HbA1C)	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59748	C59748	Participant mother pregnancy diabetes status	Status of diabetes for participant's mother during pregnancy	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59749	C59749	Family history insulin current use indicator	Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59750	C59750	Blood glucose test method type	Type of method used to test blood glucose	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59751	C59751	Insulin basal current use status	Status indicating whether the participant currently uses basal or long acting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59752	C59752	Insulin bolus current use status	Status indicating whether the participant currently uses bolus or short acting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59753	C59753	Insulin neutral protamine hagedorn dose	Dose of neutral protamine hagedorn (NPH) insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59754	C59754	Insulin premix dose	Dose of premix insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59755	C59755	Insulin inject difficult status	Status related to difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59756	C59756	Insulin inject difficult type	Type of difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59757	C59757	Insulin inject difficult type other text	The free-text field related to 'Insulin inject difficult type', specifying other text. Type of difficulty injecting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59758	C59758	Medication diabetes not insulin current former indicator	Indicator of whether the participant is currently taking or has previously taken any diabetes medication other than insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59759	C59759	Medication diabetes biguanide status	Status related to the use of biguanide medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59760	C59760	Medication diabetes sulfonylurea status	Status related to the use of sulfonylurea medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59761	C59761	Medication diabetes thiazolidinedione status	Status related to the use of thiazolidinedione medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59762	C59762	Medication diabetes GLP-1 agonist status	Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59763	C59763	Medication diabetes DPP-4 inhibitor status	Status related to the use of DPP-4 (dipeptidyl peptidase 4) inhibitor medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59764	C59764	Medication diabetes SGLT2 inhibitor status	Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59765	C59765	Medication diabetes other not insulin status	Status related to the use of other medications for diabetes other than insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59766	C59766	Medication diabetes combination status	Status related to the use of combination medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.