CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1726 - 1750 of 1834

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C59900	C59900	Work oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured work (in watts) being generated to the predicted work (in watts)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60090	C60090	Parameter map calculation other text	The free-text field related to 'Parameter map calculation type', specifying other text. Type(s) of parameter maps calculated for the perfusion MRI scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11922	C11922	Modified Fatigue Impact Scale (MFIS) - physical uncomfort score	Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59948	C59948	Oxygen uptake heart rate ventilatory anaerobic threshold ratio value	Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59908	C59908	Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60098	C60098	Imaging crusher gradient use indicator	Indicator of whether a crusher gradient was used during imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12795	C12795	Gene coding region sequenced indicator	Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11930	C11930	Modified Fatigue Impact Scale (MFIS) - physical sub score	Sum of MFIS Physical items (range: 0-36)	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59956	C59956	Carbon dioxide ventilatory equivalent oxygen uptake peak predict value	Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12905	C12905	Echocardiogram left ventricular mass index measurement	Measurement of the left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume multiplied by an estimate of the myocardial density, corrected for body surface area obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59916	C59916	Gas exhale volume oxygen uptake peak predict value	Value predicted, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59705	C59705	Pre-diabetes diagnosis ever indicator	Indicator of whether the participant has ever been diagnosed with pre-diabetes (impaired fasting glucose, impaired glucose tolerance)	Supplemental-Highly Recommended	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60003	C60003	Heart trial start rate	Heart rate, in beats per minute (BPM), at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12803	C12803	Gene variant mutation implications confirmed mRNA analysis indicator	Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12864	C12864	Echocardiogram left atrial dimension measurement	Measurement of the left atrial dimension obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04509	C04509	ECG PR interval	Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60011	C60011	Work trial other timepoint elapsed time minute count	Count in elapsed minutes of the work trial at which data is collected for the other timepoint	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59971	C59971	Oxygen end tidal partial pressure oxygen uptake peak measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12872	C12872	Echocardiogram mitral valve stenosis degree status	Status of the degree of mitral valve stenosis as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60019	C60019	Tidal volume body temperature pressure saturate trial other timepoint measurement	Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1726 - 1750 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.