CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1701 - 1725 of 1834

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1191-C07105	C07105	Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator	Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19723	C19723	Laboratory procedure anti-pancreatic autoantibodies value	Value of the amount of anti-pancreatic autoantibodies in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12899	C12899	Echocardiogram right ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C59015	C59015	Imaging unsuppress spectrum indicator	Indicator of whether an unsuppressed spectrum was captured	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10729	C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurement of the left atrial antero-posterior dimension obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60035	C60035	Blood oxygen saturation submaximal absolute trial end measurement	Measurement, as a percentage, of blood oxygen saturation (SpO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56171	C56171	Rest work measurement	Measurement of work, in watts, that the participant generates at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59995	C59995	Leg fatigue ventilatory anaerobic threshold Borg scale	Scale value of leg fatigue using the Borg Scale when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60177	C60177	Imaging voxel 2 same location indicator	Indicator of whether voxel 2 is in the same location as voxel 1	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10743	C10743	Echocardiogram tricuspid valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60043	C60043	Respiratory exchange ratio trial recovery start value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56225	C56225	Rest heart rate measurement	Measurement, in beats per minute (BPM), of the heart rate at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60003	C60003	Heart trial start rate	Heart rate, in beats per minute (BPM), at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12803	C12803	Gene variant mutation implications confirmed mRNA analysis indicator	Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12864	C12864	Echocardiogram left atrial dimension measurement	Measurement of the left atrial dimension obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C54235	C54235	Echocardiogram right ventricular posterior wall thickness end diastole measurement	Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11099	C11099	Pulmonary function test type	Type of pulmonary function testing performed	Supplemental-Highly Recommended	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59933	C59933	Carbon dioxide output oxygen uptake peak measurement	Measurement, in milliliters per minute (mL/min), of carbon dioxide output (VCO2) at peak oxygen uptake (VO2) during the trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60058	C60058	Participant subjective status all trial end text	The free-text field capturing the participant's description of symptoms experienced following the exercise trials	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59893	C59893	Time exclude rest ventilatory anaerobic threshold elapse minute count	Count of total elapsed minutes, excluding rest time, at which the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11915	C11915	Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score	Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59941	C59941	Heart rate submaximal absolute trial measurement	Measurement, in beats per minute (BPM), of the heart rate during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59799	C59799	Acoustic reflex test condition type	Type of test condition for the acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1701 - 1725 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.