CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11918 Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C59944 Heart rate oxygen uptake peak predict value

Value predicted, in beats per minute (BPM), of the heart rate for peak oxygen uptake (VO2) attainment

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59904 Speed submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the speed (in revolutions per minute, RPM) during the Submaximal Absolute Trial to the instantaneous speed (in RPM) at the time oxygen uptake (VO2) peaked

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60348 Vigorous activity average duration

Duration of average time the participant spent in vigorous activity

 Supplemental-Highly Recommended Exercise Wearables False Mitochondrial Disease Mitochondrial Disease
C60094 Imaging arterial spin labeling phase type

Type of arterial spin labeling phase used in imaging

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12789 Gene deletions duplications limits clearly defined indicator

Indicator of whether the limits of deletions and duplications are defined

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C07107 Center for Epidemiologic Studies-Depression Scale (CES-D) - crying spell indicator

Indicates how often the subject had crying spells in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C59952 Oxygen uptake heart rate oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of (1) the measured ratio of VO2, in milliliters (mL), to the heart rate, in beats per minute (BPM), to (2) the predicted ratio of VO2 to the heart rate

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59912 Respiration submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the respiratory rate (RR) (in breaths per minute) during the Submaximal Absolute Trial to the RR at the time oxygen uptake (VO2) peaked

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60173 Imaging voxel diffusion reduce area indicator

Indicator of whether the voxel is over an area with reduced (restricted) diffusion

 Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) False Mitochondrial Disease Mitochondrial Disease
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C60039 Work trial recovery start measurement

Measurement of work, in watts, generated at the beginning of the trial recovery period

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C19607 Genetic test mitochondrial DNA variant mutation quantitative analysis heteroplasmy level type

Type of heteroplasmy level in quantitative analysis for mitochondrial DNA variant or mutation

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C56201 Rest oxygen uptake kilogram measurement

Measurement of oxygen uptake (VO2) at rest, in milliliters per kilogram per minute (mL/kg/min)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59999 Oxygen uptake trial start measurement

Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C10751 Echocardiogram tissue doppler mitral annulus E' velocity measurement

Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C56249 Rest partial pressure end tidal carbon dioxide measurement

Measurement of partial pressure of end-tidal carbon dioxide at rest

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60007 Blood oxygen saturation trial start measurement

Measurement, as a percentage, of blood oxygen saturation (SpO2) at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59967 Carbon dioxide end tidal partial pressure oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) at the attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12868 Echocardiogram left ventricular trabeculation ratio indicator

Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) False Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.