CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 26 - 50 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3130-C13788	C13788	Imaging chronic infarct anatomic site	Anatomic site of the chronic infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60075	C60075	Imaging diffusion-weighted imaging white matter abnormality characteristic specify text	The free-text field to specify the characteristics of the white matter abnormality on diffusion-weighted imaging DWI	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60065	C60065	Imaging quality technically satisfactory partial specify text	Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60083	C60083	Imaging brain abnormal enhancement anatomic site	Anatomic site of abnormal enhancement found in brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60144	C60144	Imaging brain computed tomography perform multiple count type	Type of count for the number of brain computed tomography (CT) imaging sessions performed on the participant	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C17681	C17681	Family history collection source	The source of collected family history data	Core	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60152	C60152	Imaging lesion hypodensity anatomic site	Anatomic site describing the location of hypodensity	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60160	C60160	Imaging cortical malformation indicator	Indicator of whether there are cortical malformations	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60059	C60059	Imaging brain magnetic resonance imaging perform greater than six count	Count specifying the number of brain magnetic resonance imaging (MRI) sessions performed on the participant when greater than six	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12496	C12496	Imaging cerebellum normality status	Status related to whether the cerebellum appears normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19999	C19999	Imaging white matter tract type	Type related to imaging of the white matter tracts	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12467	C12467	Imaging brain magnetic resonance imaging perform multiple status	Status related to whether multiple brain magnetic resonance imaging (MRI) sessions have been performed on the participant	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60220	C60220	Imaging restrict diffusion conus medullaris status	Status related to whether conus medullaris restricted diffusion is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C12475	C12475	Imaging magnetic resonance imaging T1 T2 sequence name	The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59793	C59793	Tympanometry compensated amplitude measurement	Measurement of compensated amplitude obtained by tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12496	C12496	Imaging cerebellum normality status	Status related to whether the cerebellum appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60063	C60063	Imaging diffusion b-value type	Type of diffusion b-value used for the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60196	C60196	Imaging interpretation spine segment anatomic site	Anatomic site of spine segments available for interpretation in imaging	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59809	C59809	Audiometry threshold pure tone bone conduction stimulus frequency type	Type of frequency of the stimulus presented for pure tone audiometric threshold bone conduction testing	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19688	C19688	Imaging cerebrum finding type	Type of finding related to imaging of the cerebrum	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C10931	C10931	Imaging quality technically satisfactory status	Status related to whether the quality of the images was technically satisfactory	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 26 - 50 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.