CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C60303	C60303	Mitochondrial disease choke solid indicator	Indicator of whether the participant chokes with solids	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59702	C59702	Polycystic ovarian syndrome diagnosis indicator	Indicator of whether the participant has ever been diagnosed with polycystic ovarian syndrome	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54622	C54622	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result 90 percent confidence interval low bound value	Value of the lower bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56414	C56414	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension T score sum value	The sum of the T scores the subject received on the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3128-C59956	C59956	Carbon dioxide ventilatory equivalent oxygen uptake peak predict value	Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60201	C60201	Imaging spinal cord atrophy indicator	Indicator of whether spinal cord atrophy is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59814	C59814	Audiometry speech awareness threshold measurement	Measurement of the participant's speech awareness threshold obtained by speech audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60110	C60110	Dual X-ray absorptiometry lumbar spine areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60258	C60258	Organ donation register indicator	Indicator of whether the participant has registered for organ donation	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59709	C59709	Blood pressure cuff size value	Size of the blood pressure cuff used to measure the participant's blood pressure	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59916	C59916	Gas exhale volume oxygen uptake peak predict value	Value predicted, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60311	C60311	Mitochondrial disease dysphagia diagnosis type	Type of dysphagia diagnosis the participant received	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C21109	C21109	Visit assessment complete type	Type of assessment completed during visit	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3086-C59695	C59695	Dietary supplement study use day count	Count of days the participant took dietary supplements before or during the study	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56422	C56422	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid assist listen device used indicator	The indicator relating to whether the examinee used his/her assisted listening device during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3128-C59964	C59964	Oxygen ventilatory equivalent oxygen uptake peak measure predict ratio value	Value at peak oxygen uptake (VO2), as a percentage, of the ratio of (1) the measured ratio of the volume of gas exhaled (VE) to VO2, to (2) the predicted ratio of VE to VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60209	C60209	Imaging spinal cord lesion primary pattern type	Type of spinal cord lesion primary pattern found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59822	C59822	Otoacoustic emission artifact frequency text	Free-text field listing the frequencies with artifact otoacoustic emissions (OAEs)	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60118	C60118	Dual X-ray absorptiometry total hip areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the total hip	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60266	C60266	Genetic test methodology text	The free-text field to specify the test methodology for genetic testing	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59924	C59924	Oxygen uptake unit mass peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 per kilogram to predicted peak VO2 per kilogram	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60183	C60183	Imaging metabolite level category	Category of the imaging metabolite levels	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59782	C59782	Otoscopy pinna abnormal type	Type of abnormal otoscopy finding for the pinna	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60049	C60049	Blood pressure systolic trial recovery start measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60319	C60319	Mitochondrial disease prior abdominal pain trigger type other text	The free-text field related to 'Mitochondrial disease prior abdominal pain trigger type', specifying other text. Type of trigger of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.