CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1801 - 1825 of 1834

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3137-C12902	C12902	Echocardiogram left ventricle end systolic volume index measurement	Measurement calculated from end systolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C15559	C15559	Imaging metabolite type	Type of imaging metabolite measured	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18168	C18168	Laboratory procedure total cholesterol measurement	Measurement of the total amount of cholesterol in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17960	C17960	Cardiovascular Holter exam tachycardia episode total count	Count of the total number of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12490	C12490	Imaging ventricle normality status	Status related to whether the ventricles appear normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C15458	C15458	Imaging spinal cord lesion anatomic site	Specifies the location of lesions in the spinal cord with respect to the different levels of vertebrae (cervical-C, thoracic-T, lumbar-L)	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12500	C12500	Imaging corpus callosum change status	Status related to changes in the corpus callosum observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12844	C12844	Cardiac MRI ventricle end systolic volume index measurement	Measurement of the selected ventricle's end systolic volume divided by the participant's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12903	C12903	Echocardiogram right ventricle end systolic volume index measurement	Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C06246	C06246	Medical history condition type	Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16164	C16164	Hormonal therapy start date/time	The date and time (if applicable and known) the participant started hormonal therapy	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C18169	C18169	Laboratory procedure triglycerides measurement	Measurement of the amount of triglycerides in the participant's blood	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12912	C12912	Echocardiogram pericardial effusion abnormal indicator	Indicator of whether there is pericardial effusion or abnormality observed by echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C12171	C12171	Dual X-ray absorptiometry scanner use type	Type of scanner used for dual X-ray absorptiometry (DXA)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1801 - 1825 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.