CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 1651 - 1675 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3137-C10733	C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12909	C12909	Echocardiogram right ventricular systolic pressure measurement	Measurement of right ventricular systolic pressure estimate obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C17963	C17963	Cardiovascular mitral valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C18879	C18879	Cardiovascular Holter predominant heart rhythm type other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11109	C11109	Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator	Indicator of whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C12476	C12476	Imaging other incidental finding indicator	Indicator of whether other incidental findings are found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C10932	C10932	Imaging lesion found indicator	Indicator of whether lesions are found in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12845	C12845	Cardiac MRI left ventricle septal thickness measurement	Measurement of the thickness of the interventricular septum of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10751	C10751	Echocardiogram tissue doppler mitral annulus E' velocity measurement	Measurement of tissue doppler mitral annulus E' velocity obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12807	C12807	Gene second disease allele indicator	Indicator of whether a second disease allele was identified	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12854	C12854	Cardiac MRI gadolinium contrast use indicator	Indicator of whether gadolinium-based contrast was used for the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12868	C12868	Echocardiogram left ventricular trabeculation ratio indicator	Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C16197	C16197	Biological sample in repository location name	The location of the banked biological sample or specimen, if known	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12887	C12887	Echocardiogram left ventricular concentric remodel status	Status of concentric remodeling in the left ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C12511	C12511	Imaging post-processing raw data save indicator	Indicator of whether raw data was saved in post processing	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12916	C12916	Cardiovascular Holter exam stop date time	Date (and time, if applicable and known) the Holter examination stopped	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12895	C12895	Echocardiogram right ventricular internal dimension end systole measurement	Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.