CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C59988	C59988	Breathlessness rest Borg scale	Scale value of breathlessness at rest using the Borg Scale	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59845	C59845	Ocular motor assessment spontaneous test eye close status	Status of the participant's spontaneous ocular motor testing with eyes close	Supplemental-Highly Recommended	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59772	C59772	Hypoglycemia feed change indicator	Indicator of whether any changes in feeding due to hypoglycemia have been made	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60253	C60253	Diagnosis primary mitochondrial disease support sign type	Type of sign supportive of primary mitochondrial disease diagnosis	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20526	C20526	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category	Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54258	C54258	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value	Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3131-C60170	C60170	Imaging acute metabolic crisis indicator	Indicator of whether the imaging study was done during an acute metabolic crisis	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60036	C60036	Blood pressure systolic submaximal absolute trial end measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20003	C20003	Hypoglycemia diagnosis indicator	The indicator related to having hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56438	C56438	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score	The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3089-C19687	C19687	Imaging cerebrum component type	Type of cerebrum component	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59958	C59958	Carbon dioxide ventilatory equivalent oxygen uptake peak measure predict ratio value	Value at peak oxygen uptake (VO2), as a percentage, of the ratio of (1) the measured ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) to (2) the predicted ratio of VE to VCO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60203	C60203	Imaging spine enhancement indicator	Indicator of whether there is enhancement in the spine imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59816	C59816	Audiometry speech test score	Score for the speech audiometry test	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60112	C60112	Dual X-ray absorptiometry lumbar spine bone mineral apparent density z score	Z-score of the bone mineral apparent density (BMAD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60260	C60260	Family history relative tissue specimen name	Name of tissue specimen collected from the participant's family member	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3094-C59711	C59711	Temperature measurement anatomic site other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text.	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59918	C59918	Gas exhale volume oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured volume of gas exhaled (VE) to the predicted VE	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3125-C59776	C59776	Allergy text	Free-text field to specify the participant's allergies	Supplemental	Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60225	C60225	Organoid type	Type of organoid	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60313	C60313	Mitochondrial disease swallow study result type	Type of result the participant's swallowing study revealed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59713	C59713	Hospitalization diabetes diagnosis indicator	Indicator of whether the participant was hospitalized at the time the diabetes was diagnosed	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C51670	C51670	School name	The name of the school that the subject currently attends, if applicable	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3132-C60211	C60211	Imaging grey matter spinal cord anatomic site	Anatomic site where spinal cord grey matter is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59824	C59824	Auditory brainstem response stimulus conduction type	Type of stimulus conduction used for auditory brainstem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.