CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3132-C60063	C60063	Imaging diffusion b-value type	Type of diffusion b-value used for the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59801	C59801	Acoustic reflex decay status	Status of the reflex decay in acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60338	C60338	Mitochondrial disease fecal elastase test indicator	Indicator of whether the participant had fecal elastase testing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59903	C59903	Speed oxygen uptake peak measurement	Measurement of instantaneous speed, in revolutions per minute (RPM), when peak oxygen uptake (VO2) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60347	C60347	Step average daily count	Count of the average number of steps taken by the participant daily	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54253	C54253	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60298	C60298	Mitochondrial disease swallow pain change status	Status related to the change in the participant's current pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56430	C56430	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value	The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3088-C60093	C60093	Imaging arterial spin labeling acquisition type	Type of arterial spin labeling used in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59951	C59951	Oxygen uptake heart rate submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of (1) the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), during the Submaximal Absolute Trial to (2) the same ratio at the attainment of peak VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60196	C60196	Imaging interpretation spine segment anatomic site	Anatomic site of spine segments available for interpretation in imaging	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59809	C59809	Audiometry threshold pure tone bone conduction stimulus frequency type	Type of frequency of the stimulus presented for pure tone audiometric threshold bone conduction testing	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60105	C60105	Dual X-ray absorptiometry whole body less head areal bone mineral density value	Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the whole body not including the head	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59911	C59911	Respiration oxygen uptake peak measure rate	Rate of respiration (RR), in breaths per minute, measured at attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60306	C60306	Mitochondrial disease tired eat indicator	Indicator of whether the participant gets tired when eating	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56439	C56439	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3128-C59959	C59959	Oxygen ventilatory equivalent submaximal absolute trial value	Value of the ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60204	C60204	Imaging enhancement spine level text	Free-text field specifying the spine level(s) with enhancement found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59817	C59817	Audiometry speech hearing level measurement	Measurement of hearing level obtained by speech audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60113	C60113	Trabecular Bone Score performed indicator	Indicator of whether the Trabecular Bone Score was performed	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60261	C60261	Family history relative global unique identifier number	Number representing the Global Unique ID (GUID) of the participant's family member	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59919	C59919	Oxygen uptake submaximal absolute trial unit mass measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60178	C60178	Imaging multivoxel spectroscopy indicator	Indicator of whether multivoxel spectroscopy imaging was done	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59777	C59777	Otoscopy anatomic site	Anatomic site of the otoscopy	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60226	C60226	Organoid type other text	The free-text field related to 'Organoid type', specifying other text. Type of organoid	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.