CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 51 - 75 of 1834

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59871	C59871	Vestibulo-ocular reflex phase measurement	Measurement of the vestibulo-ocular reflex (VOR) phase captured during testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59733	C59733	Consume dairy or substitute indicator	Indicator of whether the participant consumes dairy or dairy substitute products	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59974	C59974	Blood pressure systolic ventilatory anaerobic threshold measurement	Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59832	C59832	Auditory brainstem response wave form morphology text	Free-text field describing the wave form morphology obtained by auditory brain stem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60221	C60221	Imaging cauda equina root enhancement status	Status related to whether cauda equina root enhancement is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60130	C60130	Dual X-ray absorptiometry ultradistal radius areal bone mineral density z score	Z-score of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the ultradistal radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59936	C59936	Carbon dioxide output oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake of measured carbon dioxide output (VCO2) to the predicted VCO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21863	C21863	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task question type	Type of questions asked in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59794	C59794	Tympanometry peak pressure measurement	Measurement of peak pressure obtained by tympanometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60243	C60243	Biomarker leukocyte assessment type other text	The free-text field related to 'Biomarker leukocyte assessment type', specifying other text. Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60331	C60331	Mitochondrial disease pancreas insufficiency indicator	Indicator of whether the participant had pancreatic insufficiency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59896	C59896	Work ventilatory anaerobic threshold measurement	Measurement of work, in watts, being expended instantaneously when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59760	C59760	Medication diabetes sulfonylurea status	Status related to the use of sulfonylurea medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C60185	C60185	Muscle group type other text	The free text field related to 'Muscle group type', specifying other text. Type of muscle group	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60291	C60291	Mitochondrial disease swallow difficult frequency type	Type of frequency with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60138	C60138	Dual X-ray absorptiometry R2 lateral distal femur areal bone mineral density z score	Z-score of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59944	C59944	Heart rate oxygen uptake peak predict value	Value predicted, in beats per minute (BPM), of the heart rate for peak oxygen uptake (VO2) attainment	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21895	C21895	Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) total score	Total number of digits produced score, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60064	C60064	Imaging diffusion b-value type other text	The free-text field related to 'Imaging diffusion b-value type', specifying other text. Type of diffusion b-value used for the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59802	C59802	Audiometry threshold pure tone assessment status	Status indicating that pure tone audiometric thresholds were not assessed	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C19253	C19253	Imaging pre-existing hardware surgery indicator	Indicator for pre-existing hardware or surgery	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60339	C60339	Mitochondrial disease fecal elastase test result status	Status to the participant's fecal elastase test result status	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59904	C59904	Speed submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of the speed (in revolutions per minute, RPM) during the Submaximal Absolute Trial to the instantaneous speed (in RPM) at the time oxygen uptake (VO2) peaked	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60348	C60348	Vigorous activity average duration	Duration of average time the participant spent in vigorous activity	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60299	C60299	Mitochondrial disease good appetite indicator	Indicator of whether the participant has a good appetite	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 51 - 75 of 1834

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.