CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 26 - 50 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59861	C59861	Cervical vestibular-evoked myogenic potential P1-N1 amplitude ratio value	Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by cervical vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59723	C59723	Medication other progesterone current indicator	Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59699	C59699	Dietary supplement route type other text	The free-text field related to 'Dietary supplement route type', specifying other type. Type of administration route for the dietary supplement	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54274	C54274	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F1607-C21860	C21860	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task normal baseline score	Total number correct in normal baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59083	C59083	Repository contact text	The free-text field to specify the contact information for a biological sample repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60167	C60167	Imaging brain atrophy anatomic site	Anatomic site of brain atrophy found in imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60066	C60066	Imaging cortical migration anomaly indicator	Indicator of whether cortical migration anomalies are found within the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60012	C60012	Work trial other timepoint measurement	Measurement of work, in watts, generated at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60282	C60282	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type other text	The free-text field related to 'Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn frequency type', specifying other text. Type of frequency with which the participant currently has GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59869	C59869	Sinusoidal harmonic acceleration velocity measurement	Measurement of the velocity used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59731	C59731	Primary nutrition intake source type	Type of the participant's primary source of nutritional intake	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59972	C59972	Oxygen end tidal partial pressure submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of partial pressure of end-tidal oxygen (PETO2) during the Submaximal Absolute Trial to PETO2 at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59830	C59830	Auditory brainstem response wave peak latency measurement	Measurement of wave peak latency obtained by auditory brain stem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54282	C54282	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F1607-C21893	C21893	Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) error count	Number of errors in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59119	C59119	Genetic study data genotype category type	Type of genotype category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60074	C60074	Imaging diffusion-weighted imaging white matter abnormality anatomic site	Anatomic site of the of the white matter abnormality on diffusion-weighted imaging DWI	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60020	C60020	Respiration rate trial other timepoint measurement	Measurement, in breaths per minute (br/min), of the respiratory rate at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59877	C59877	Maximum sway excursion forward position percent value	Value of the percent of maximum sway excursion in a forward position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60061	C60061	Imaging contrast agent dose unit of measure	Unit of measure for the dose of contrast agent used for the imaging scan	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59739	C59739	Bone fracture anatomic site other text	Free-text field to specify other anatomic site of bone fractures	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59980	C59980	Blood pressure diastolic submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of diastolic blood pressure (BP) during the Submaximal Absolute Trial to diastolic BP at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60085	C60085	Imaging preload contrast agent previous injection dose value	Value of the dosage of the preload contrast agent previously injection	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59837	C59837	Right eye vision status	Status of the participant's vision using the right eye	Supplemental	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.