CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 9 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3130-C17402	C17402	Site name	The name of the site for the study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C17409	C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3136-C17402	C17402	Site name	The name of the site for the study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13761	C13761	Imaging acute infarct count	The number of acute infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13766	C13766	Imaging brain acute infarct anatomic site	Indicates the anatomic brain region of the acute infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16163	C16163	Hormone therapy name	The name of the hormone therapy taken by the participant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C17397	C17397	Visit number	The numeric value associated with a particular assessment/examination of a participant/subject on a study	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.