CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1651 - 1675 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3136-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C08255	C08255	Imaging visual analysis blinded indicator	Indicator of whether the visual analysis was performed blinded to clinical data	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3136-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12491	C12491	Imaging ventricle abnormality type	The type of abnormality in the ventricles on the image	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11099	C11099	Pulmonary function test type	Type of pulmonary function testing performed	Supplemental-Highly Recommended	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12918	C12918	Cardiovascular Holter exam maximum heart rate duration	Duration of maximum heart rate recorded during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12491	C12491	Imaging ventricle abnormality type	The type of abnormality in the ventricles on the image	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C54237	C54237	Echocardiogram pericardial effusion abnormal text	Free-text field to describe pericardial effusion or abnormality observed by echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12908	C12908	Echocardiogram intracardiac find type	Type of intracardiac findings observed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C10874	C10874	Holter exam maximum heart rate	Maximum heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C12475	C12475	Imaging magnetic resonance imaging T1 T2 sequence name	The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12849	C12849	Cardiac MRI left ventricle trabeculations count	Count of trabeculations in the left ventricle when non-compaction is present	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1651 - 1675 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.