CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20143	C20143	Mitochondrial disease swallow difficult change over time indicator	Indicator of whether the participant's difficulty swallowing has changed over time	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60292	C60292	Mitochondrial disease swallow difficult frequency type other text	The free-text field related to 'Mitochondrial disease swallow difficult frequency type', specifying other text. Type of frequency with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60291	C60291	Mitochondrial disease swallow difficult frequency type	Type of frequency with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60290	C60290	Mitochondrial disease swallow difficult occur liquid solid type	Type of bolus consistency (solid and/or liquid) with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60288	C60288	Mitochondrial disease swallow difficult indicator	Indicator of whether the participant has difficulty with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60289	C60289	Mitochondrial disease swallow difficult onset age category	Category of the participant's age at the onset of difficulty with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20138	C20138	Mitochondrial disease prior burp detail text	The free-text field to specify additional details about participant's past burping symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20136	C20136	Mitochondrial disease prior burp occur specific drink food indicator	Indicator of whether the participant's past burping occurred with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20137	C20137	Mitochondrial disease prior burp specific food drink cause text	This free-text field to specify which specific foods or drinks caused participant's past burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20135	C20135	Mitochondrial disease prior burp reflux abdominal distention accompany type	Type of reflux or abdominal distention that accompanied prior burping episodes for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20133	C20133	Mitochondrial disease prior burp stop text	The free-text field to specify what stopped the participant's past burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20134	C20134	Mitochondrial disease prior burp symptom consistent indicator	Indicator of whether past symptoms of burping were consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20132	C20132	Mitochondrial disease prior burp stop age category	Category of the participant's age at the end of prior burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20130	C20130	Mitochondrial disease current burp detail text	The free-text field to specify additional details about participant's current burping symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20131	C20131	Mitochondrial disease prior burp onset age category	Category of the participant's age at the onset of prior burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20129	C20129	Mitochondrial disease current burp specific food drink cause text	The free-text field to specify which specific foods or drinks cause participant's current burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20127	C20127	Mitochondrial disease current burp reflux abdominal distention accompany type	Type of reflux or abdominal distention that accompanies current burping episodes for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20128	C20128	Mitochondrial disease current burp occur specific drink food indicator	Indicator of whether the participant's burping occurs with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20126	C20126	Mitochondrial disease current burp symptom consistent indicator	Indicator of whether current symptoms of burping are consistent day to day	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20124	C20124	Mitochondrial disease burp current prior status	Status of whether the participant's episodes of burping are current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20125	C20125	Mitochondrial disease current burp onset age category	Category of the participant's age at the onset of current burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20123	C20123	Mitochondrial disease prior oral regurgitation detail text	The free-text field to specify additional details about participant's past oral regurgitation symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20121	C20121	Mitochondrial disease prior oral regurgitation frequency type other text	The free-text field related to 'Mitochondrial disease prior oral regurgitation frequency type', specifying other text. Type of frequency with which the participant had prior oral regurgitation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20122	C20122	Mitochondrial disease prior oral regurgitation occurrence time type	Type of timing of the participant's prior episodes of oral regurgitation with respect to meals	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20120	C20120	Mitochondrial disease prior oral regurgitation frequency type	Type of frequency with which the participant had prior oral regurgitation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.