CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1 - 25 of 1834

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C57114	C57114	Rest time count	Count of the time (in minutes) taken at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20036	C20036	Height paternal measurement	Measurement of participant's father's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20035	C20035	Height maternal measurement	Measurement of participant's mother's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19618	C19618	Height standard infant use type	Indicator of whether WHO or CDC growth charts were used in height Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20328	C20328	Mitochondrial disease bowel movements current medication type	Type of medications that the participant is currently taking for help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C56033	C56033	Genetic test result source type	Type of source of the participant's genetic test results	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C16195	C16195	Biological sample in repository specimen type	Type of biological sample or specimen collected and stored in a repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59141	C59141	Genetic study data sequencing category type	Type of sequencing category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19620	C19620	Weight length standard infant use type	Indicator of whether WHO or CDC growth charts were used in weight/length Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C20247	C20247	Imaging scanner model name text	The free-text field related to name of model of imaging scanner	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59077	C59077	Genetic test result participant inform source type	Type of source that informed the participant of the genetic test results	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19582	C19582	Tanner stage pubic hair scale	The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the development of pubic hair to characterize stages of physical development in children, adolescents and adults	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C20247	C20247	Imaging scanner model name text	The free-text field related to name of model of imaging scanner	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1 - 25 of 1834

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.