CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 101 - 125 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3120-C59734	C59734	Lactose intolerant indicator	Indicator of whether that the participant is lactose intolerant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59742	C59742	Bone fracture confirmed medical record indicator	Indicator of whether the participant had their fracture confirmed in medical record	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59719	C59719	Medication seizure current indicator	Indicator of whether the participant is taking any seizure medications	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59727	C59727	Medication bisphosphonate past indicator	Indicator of whether the participant has ever taken a bisphosphonate (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate) in the past	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59735	C59735	Calcium supplement indicator	Indicator of whether the participant is taking a calcium supplement	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59720	C59720	Medication oral contraceptive current indicator	Indicator of whether the participant is currently taking oral contraceptives	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59728	C59728	Medication teriparatide indicator	Indicator of whether the participant is or has ever taken teriparatide (Forteo)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59736	C59736	Vitamin D supplement indicator	Indicator of whether the participant is taking a vitamin D supplement	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59721	C59721	Medication estrogen current indicator	Indicator of whether the participant is currently taking any estrogen forms (pill, patch, cream, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59729	C59729	Medication denosumab indicator	Indicator of whether the participant is or has ever taken denosumab (Prolia)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59737	C59737	Bone fracture count	Count of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59722	C59722	Medication depo-provera current indicator	Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59730	C59730	Medication romusuzumab indicator	Indicator of whether the participant is or has ever taken romusuzumab (Evenity)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59738	C59738	Bone fracture anatomic site	The anatomic location of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C22866	C22866	Imaging magnetic resonance imaging date and time	The date and time related to the magnetic resonance imaging	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60066	C60066	Imaging cortical migration anomaly indicator	Indicator of whether cortical migration anomalies are found within the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60074	C60074	Imaging diffusion-weighted imaging white matter abnormality anatomic site	Anatomic site of the of the white matter abnormality on diffusion-weighted imaging DWI	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10567	C10567	Imaging radio frequency coil type	Type of radio frequency (RF) coil(s) used for the body part scanned	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C10933	C10933	Imaging lesion found type	Type of lesions found in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12492	C12492	Imaging brainstem normality status	Status related to whether the brainstem appears normal or abnormal in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C12505	C12505	Imaging eye abnormality indicator	Indicator of whether eye abnormalities are present	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60059	C60059	Imaging brain magnetic resonance imaging perform greater than six count	Count specifying the number of brain magnetic resonance imaging (MRI) sessions performed on the participant when greater than six	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60067	C60067	Imaging cortical migration anomaly anatomic site	Anatomic site of the cortical migration anomalies in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.