CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59930 Oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 to predicted peak VO2

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60055 Participant subjective status trial 2 end text

The free-text field capturing the participant's description of how they felt at the conclusion of the second exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59890 Time ventilatory anaerobic threshold elapse minute total count

Count of total elapsed minutes at which the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C11912 Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score

Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C59938 Respiratory exchange ratio ventilatory anaerobic threshold value

Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59796 Tympanometry middle ear resonance estimate measurement

Measurement of the estimated middle ear resonance obtained by tympanometry

 Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59898 Work oxygen uptake peak predict value

Value predicted for instantaneous work, in watts, at attainment of peak oxygen uptake (VO2)

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60088 Imaging post processing analysis method software provided type other text

The free-text field related to 'Imaging post processing analysis method software provided type', specifying the source providing the software for imaging post processing and analysis

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C11920 Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score

Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C59946 Heart rate oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured heart rate, in beats per minute (BPM), to the predicted heart rate

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C59906 Tidal volume body temperature pressure saturate ventilatory anaerobic threshold measurement

Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60096 Imaging arterial spin labeling multiphase type phase count

Count of the number of arterial spin labeling phases in multiphase imaging acquisition

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C11928 Modified Fatigue Impact Scale (MFIS) - limit physical activity score

Scale for having limited physical activities as part of Modified Fatigue Impact Scale form

 Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) False Mitochondrial Disease Mitochondrial Disease
C07109 Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator

Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C59954 Carbon dioxide ventilatory equivalent ventilatory anaerobic threshold value

Value of the ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C12903 Echocardiogram right ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C59914 Gas exhale volume ventilatory anaerobic threshold measurement

Measurement, in liters per minute (L/min), of the volume of gas exhaled (VE) when the ventilatory anaerobic threshold (VAT) was attained

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

 Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram

 Supplemental-Highly Recommended Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C56261 Rest systolic pressure measurement

Measurement, in millimeters of mercury (mmHg), of systolic blood pressure at rest

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C60009 Blood pressure diastolic trial start measurement

Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the beginning of the exercise trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
C12818 Gene second allele identical indicator

Indicator of whether allele #2 is identical to allele #1

 Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59969 Oxygen end tidal partial pressure submaximal absolute trial measurement

Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal oxygen (PETO2) during the Submaximal Absolute Trial

 Supplemental-Highly Recommended Staged Exercise Tolerance Test False Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.