CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3088-C17797	C17797	Imaging contrast agent injection rate	Rate of injection, in milliliters per second (mL/s), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C17961	C17961	Cardiovascular aortic valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60268	C60268	Genetic test experimental validation type other text	Free-text field related to the 'Genetic test experimental validation type other text', specifying the experimental validation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59937	C59937	Respiratory exchange ratio submaximal absolute trial value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60051	C60051	Perceived exertion trial recovery start Borg scale	Scale value of perceived exertion (PE) using the Borg Scale at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59798	C59798	Acoustic reflex stimulus tone frequency type	Type of frequency of the stimulus tone used in acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59897	C59897	Work oxygen uptake peak measurement	Measurement of work, in watts, being expended instantaneously when peak oxygen uptake (VO2) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C10839	C10839	Imaging volume count	The number of volume data sets acquired during the imaging scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59984	C59984	Rate pressure product oxygen uptake peak measure value	Measured value of the Rate Pressure Product at the attainment of peak oxygen uptake (VO2), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59841	C59841	Ocular motor assessment horizontal status	Status of the participant's horizontal eye movement during ocular motor assessment	Supplemental-Highly Recommended	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12874	C12874	Echocardiogram pulmonic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17894	C17894	Gene missense nonsense variant point mutation location intron text	The free-text field about missense/nonsense variant or point mutation at the intron	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60032	C60032	Gas exhale volume submaximal absolute trial end measurement	Measurement of the volume of gas exhaled (VE) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56161	C56161	Pre test comment text	The free-text field representing any comments before the test	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59992	C59992	Breathlessness submaximal absolute trial complete oxygen uptake peak Borg scale ratio value	Value, as a percentage, of the ratio of the scale value of breathlessness using the Borg Scale at the conclusion of the Submaximal Absolute Trial, to the scale value measured at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12893	C12893	Echocardiogram right ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the right ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59168	C59168	Gene whole affect exon deleted duplicated indicator	Indicator of whether the whole gene was affected by exonic deletions/duplications	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C19016	C19016	Imaging metabolite type other text	The free-text field related to 'Imaging metabolite type', specifying other text. Type of metabolite measured	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19592	C19592	Genetic test mitochondrial DNA genome deletion duplication analysis tissue type	Type of tissue tested in the mtDNA genome deletion/duplication analysis test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60040	C60040	Oxygen uptake trial recovery start measurement	Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56207	C56207	Rest oxygen uptake measurement	Measurement of oxygen (VO2) uptake at rest, in milliliters per minute (mL/min)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60000	C60000	Oxygen uptake unit mass trial start measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60093	C60093	Imaging arterial spin labeling acquisition type	Type of arterial spin labeling used in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.