CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3088-C10578	C10578	Imaging label pulse duration	Duration in milliseconds of the labeling pulse in imaging acquisition for the Axial Arterial Spin Labeling (ASL) MRI sequence being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59983	C59983	Rate pressure product ventilatory absolute threshold value	Value of the Rate Pressure Product at the attainment of the ventilatory anaerobic threshold (VAT), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59840	C59840	Ocular motor assessment type	Type of ocular motor assessment performed	Supplemental-Highly Recommended	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12873	C12873	Echocardiogram tricuspid valve stenosis degree status	Status of the degree of tricuspid valve stenosis as assessed by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C17893	C17893	Gene missense nonsense variant point mutation location other text	The free-text field about missense/nonsense variant or point mutation at locations other than the exon and intron	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60031	C60031	Heart submaximal absolute trial end rate	Heart rate, in beats per minute (BPM), at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59991	C59991	Breathlessness oxygen uptake peak measure Borg scale	Scale value of breathlessness measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12892	C12892	Echocardiogram left ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the left ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19590	C19590	Genetic test mitochondrial DNA panel tissue type	Type of tissue tested in the mtDNA panel test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60039	C60039	Work trial recovery start measurement	Measurement of work, in watts, generated at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56201	C56201	Rest oxygen uptake kilogram measurement	Measurement of oxygen uptake (VO2) at rest, in milliliters per kilogram per minute (mL/kg/min)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59999	C59999	Oxygen uptake trial start measurement	Measurement, in milliliters per minute (mL/min), of oxygen uptake (VO2) at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60092	C60092	Imaging arterial spin labeling scheme type other text	The free-text field related to 'Imaging arterial spin labeling scheme type', specifying other text. Type of Arterial spin labeling scheme used in imaging	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12900	C12900	Echocardiogram left ventricle end systolic volume measurement	Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60170	C60170	Imaging acute metabolic crisis indicator	Indicator of whether the imaging study was done during an acute metabolic crisis	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19603	C19603	Genetic test nuclear DNA clinical evaluation type	Type of basis used for the evaluation of the clinical category of nuclear DNA genetic test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56249	C56249	Rest partial pressure end tidal carbon dioxide measurement	Measurement of partial pressure of end-tidal carbon dioxide at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60007	C60007	Blood oxygen saturation trial start measurement	Measurement, as a percentage, of blood oxygen saturation (SpO2) at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59967	C59967	Carbon dioxide end tidal partial pressure oxygen uptake peak measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10744	C10744	Echocardiogram left ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19615	C19615	Genetic test name	The name of the genetic test used	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.