CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20004 Hypoglycemia diagnosis type

The type related to having concern or diagnosis of hypoglycemia or low blood sugar

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20273 Insulin premix current use status

Status indicating whether the participant currently uses premix insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59743 Genetic test diabetes indicator

Indicator related to whether the participant had genetic testing related to diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20281 Emergency room use other diabetes related past year count

The count of the times the participant used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59751 Insulin basal current use status

Status indicating whether the participant currently uses basal or long acting insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20289 Urgent care clinic use past year indicator

The indicator of whether the participant has used after-hours or urgent care clinic other than the emergency room in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59759 Medication diabetes biguanide status

Status related to the use of biguanide medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C21109 Visit assessment complete type

Type of assessment completed during visit

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60184 Muscle group type

Type of muscle group

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20297 Hospital admission hypoglycemia past year count

The count of the times the participant was admitted to hospital for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20312 Imaging two dimensional speckle tracking echocardiography left ventricle circumferential strain value

Value of circumferential strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C59887 Vestibular head impulse test overt saccades count

Count of overt saccades encountered during vestibular head impulse testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59847 Positional test supine status

Status of the participant's eye movement in a supine position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52345 12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale

Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59774 Hypoglycemia cause indicator

Indicator of whether the participant with a diagnosis of hypoglycemia has been told the cause

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54260 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type

Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59855 Peak slow-phase eye velocity measurement

Measurement of the peak slow-phase eye velocity (PSEV)

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52353 12-item Short Form Health Survey Version 2 (SF-12v2) - Bodily Pain Raw Score

Raw score of bodily pain (BP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54268 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score

Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59863 Ocular vestibular-evoked myogenic potential P1 latency measurement

Measurement of the first positive peak (P1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C18241 Diagnosis age value unit of measure

Unit of measure for age value of the participant when initially diagnosed with disease/disorder

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54276 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score

Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59871 Vestibulo-ocular reflex phase measurement

Measurement of the vestibulo-ocular reflex (VOR) phase captured during testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant of the family member with diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
Displaying 401 - 425 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.