CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59713 Hospitalization diabetes diagnosis indicator

Indicator of whether the participant was hospitalized at the time the diabetes was diagnosed

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20280 Emergency room use hyperglycemia past year count

The count of the times the participant used the emergency room for hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59750 Blood glucose test method type

Type of method used to test blood glucose

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20288 911 call non-diabetes related past year count

The count of the times that the participant called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59758 Medication diabetes not insulin current former indicator

Indicator of whether the participant is currently taking or has previously taken any diabetes medication other than insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20025 Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status

Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20296 Hospital admission past year count

The count of times the participant was admitted to hospital in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20311 Imaging two dimensional speckle tracking echocardiography left ventricle anatomic site

Anatomic site in the left ventricle measured for strain using two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C54252 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Digit span total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Digit Span Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20304 Hospital admission other diabetes related past year total day count

The total duration, in days, of all of the participant's admissions to hospital for reasons related to diabetes other than hypoglycemia or hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20263 Diabetic ketoacidosis emergency post diagnosis diabetes count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the time since their diagnosis of diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20319 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain value

Value of segmental strain in the two-chamber view measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C59773 Hypoglycemia feed change type

Type of change in feeding due to hypoglycemia

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54259 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value

Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59854 Caloric irrigation type

Type of caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52352 12-item Short Form Health Survey Version 2 (SF-12v2) -Mental Health Raw Score

Raw score of mental health (MH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54267 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type

Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59862 Sternocleidomastoid muscle activity monitor indicator

Indicator of whether sternocleidomastoid muscle (SCM) activity was monitored during the testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C16159 Family history relative age at onset value

Age the participant's relative experienced the onset of the disease or disorder

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54275 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59870 Vestibulo-ocular reflex gain measurement

Measurement of the vestibulo-ocular reflex (VOR) gain (the ratio of eye velocity to chair (head) velocity) captured during testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20246 Birth premature week early count

The count of weeks early that the participant was born prematurely

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54283 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59878 Maximum sway excursion forward right position percent value

Value of the percent of maximum sway excursion in a forward right position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
Displaying 301 - 325 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.