CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20006 Bone fracture indicator

The indicator related to having a bone fracture

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20104 Mitochondrial disease prior GI symptom consistent day to day indicator

Indicator of whether past symptoms of GERD, heartburn, mid-line chest pain, esophageal burning were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19729 Laboratory procedure vitamin D twenty five hydroxy value

Subject/Participant's amount of vitamin D twenty five hydroxy in the blood

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20229 Mitochondrial disease time GI symptom occur prior diagnosis text

The free text field to provide how long participant/subject had GI symptoms before being diagnosed with Mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20064 Mitochondrial disease vomit blood clot indicator

Indicator of whether participant's/subject's vomit has blood clots

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19612 Genetic result type

Type of genetic results

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12912 Echocardiogram pericardial effusion abnormal indicator

Whether there is pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C12930 Cardiovascular Holter exam ventricular dysrhythmia type

Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07102 Center for Epidemiologic Studies-Depression Scale (CES-D) - happy indicator

Indicates how often the subject felt happy in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C09358 Hamilton Depression Rating Scale (HDRS) - depressed mood indicator

Score for whether, how, and in what circumstances the participant/subject expresses feelings of depression (sadness, hopeless, helpless, worthless), as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20199 Mitochondrial disease prior bloat abdominal distension text

The free text field to specify additional details about the participant's/subject's past abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20033 Mitochondrial disease DNA mutation text

The free text field to specify the mitochondrial disease mitochondrial DNA mutation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19688 Imaging cerebrum finding type

The finding related to imaging of the cerebrum

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20159 Mitochondrial disease abdominal frequency pain type

Select how often a participant/subject has abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12871 Echocardiogram aortic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the aortic valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20288 Non-diabetes related 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19559 Biomark neutrophils assessment type

Type of biomark(s) assessed from neutrophils sample

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12842 Cardiac MRI ventricle end diastolic volume index value

Value of the selected ventricle's end diastolic volume measurement divided by the participant/subject's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12939 Cardiovascular Holter exam abnormality significance type

An indication if the abnormality observed during the Holter examination is clinically significant

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07110 Center for Epidemiologic Studies-Depression Scale (CES-D) - get going indicator

Indicates how often the subject felt like he/she couldn't get "going" in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.