CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19715 Dietary supplement generic name

Generic name for the supplement taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C20211 Mitochondrial disease prior bowel movement other treatment text

Indicate whether participant/subject used other treatments for bowel movements in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21863 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task question type

Type of questions asked in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C12477 Imaging other incidental finding type

The type of other incidental findings found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C16176 Hormone therapy indicator

Indicates whether participant/subject has taken hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20094 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status

The status present or prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms experienced by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18147 LDL cholesterol value

LDL cholesterol measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20219 Mitochondrial disease alternative medicine treat GI problem indicator

Indicator of whether the participant/subject has tried to treat GI problems with alternative medicine

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21895 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) total score

Total number of digits produced score, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20054 Mitochondrial disease vomit frequency other text

The free text field to specify how often the participant/subject vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12902 Echocardiogram left ventricle end systolic volume index value

Calculated from end systolic volume over body surface area - left ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20004 Hypoglycemia diagnosis type

The type related to having concern or diagnosis of hypoglycemia or low blood sugar

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20102 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burning stop age category

Select the pre-specified age of participant/subject when past GERD, heartburn, mid-line chest pain, esophageal burning stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19727 Laboratory procedure fasting C-peptide value

Subjects/Participants amount of fasting C-peptide in the blood

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20227 Mitochondiral disease life effect grade

The graded scale representing the effect of the symptoms on the participant's/subject's life

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20062 Mitochondrial disease vomit blood indicator

Indicator of whether participant/subject has ever vomited blood

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19610 Genetic test result date

The date of reporting of the genetic test results

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12493 Imaging brainstem abnormality type

The type of abnormality in the brainstem on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12910 Echocardiogram right atrial pressure measurement

Right atrial pressure measured by echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20012 World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - fracture probability percentage value

The score as the 10 year probability of fracture related to the World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - score for adults between the ages of 40-90

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.