CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59790 Audiometry test laterality type

Type of laterality for the audiometry testing

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12490 Imaging ventricle normality status

Status related to whether the ventricles appear normal or abnormal in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12503 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity indicator

Indicator of whether there is grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60252 Diagnosis primary clinical mitochondrial disease status

Status of the primary clinical mitochondrial disease diagnosis

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C19602 Genetic test mutation clinical category

The category for the type of mutation in clinical setting

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60150 Imaging scanner parameter mA value

Number value of the mA image acquisition parameters used for computed tomography imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C19614 DNA change text

The free-text field listing DNA change

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60158 Imaging hemorrhage lobe anatomic site specify text

Free-text field to specify name of the lobe where the hemorrhage is located

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C18860 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site other text

The free-text field related to 'Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site', specifying other text. Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60166 Imaging brain atrophy status

Status of brain atrophy found in imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60065 Imaging quality technically satisfactory partial specify text

Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C13786 Imaging chronic infarct present indicator

Indicates presence of chronic infarct(s)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60073 Imaging diffusion-weighted imaging white matter normality status

Status related to whether the white matter appears normal or abnormal on diffusion-weighted imaging DWI

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60081 Imaging subependymal cyst anatomic site

Anatomic site of the subependymal cysts found in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60083 Imaging brain abnormal enhancement anatomic site

Anatomic site of abnormal enhancement found in brain imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C10813 Adopted indicator

Indicator of whether the participant was adopted

Core Family History Mitochondrial Disease Mitochondrial Disease
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60194 Imaging spine multiple timepoint magnetic resonance imaging perform greater than six count

Count of the number of multiple timepoint spine magnetic resonance imaging (MRI) sessions performed on the participant when greater than six

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59807 Audiometry threshold pure tone hearing level measurement

Measurement of hearing level threshold obtained by pure tone audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History Mitochondrial Disease Mitochondrial Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.