CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3129-C60121	C60121	Dual X-ray absorptiometry femoral neck areal bone mineral density value	Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the femoral neck	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C15901	C15901	Height percentile value	Value of the participant's height percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20070	C20070	Mitochondrial disease prior vomit stop age category	Category of the participant's age at the end of prior vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60322	C60322	Mitochondrial disease pancreatitis episode type	Type of pancreatitis episodes experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19721	C19721	Dietary supplement route type	Type of administration route for the dietary supplement	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09363	C09363	Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator	Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21846	C21846	Brief Test of Adult Cognition by Telephone (BTACT) - Mean latency time lapse millisecond measurement	Mean latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60129	C60129	Dual X-ray absorptiometry ultradistal radius areal bone mineral density value	Absolute value of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the ultradistal radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11106	C11106	Pulmonary function maximal expiratory pressure (MEP) result value	Value in centimeters of water (cm H2O) of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20078	C20078	Mitochondrial disease prior vomit episode trigger text	The free-text field to specify the participant's past vomiting episode triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60330	C60330	Mitochondrial disease chronic pancreatitis indicator	Indicator of whether the participant had chronic pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20036	C20036	Height paternal measurement	Measurement of participant's father's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18777	C18777	ECG heart rhythm result type other text	The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16008	C16008	Birth control indicator	Indicates if participant uses birth control	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60290	C60290	Mitochondrial disease swallow difficult occur liquid solid type	Type of bolus consistency (solid and/or liquid) with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09371	C09371	Hamilton Depression Rating Scale (HDRS) - middle night insomnia indicator	Score for the participant/subject's difficulty, if any, with middle-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21865	C21865	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task response type	Type of responses in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60137	C60137	Dual X-ray absorptiometry R2 lateral distal femur areal bone mineral density value	Absolute value of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20086	C20086	Mitochondrial disease prior vomit abdominal pain before indicator	Indicator of whether the participant experienced abdominal pain before prior vomiting episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C18825	C18825	Dual X-ray absorptiometry scanner use other text	The free-text field related to 'Dual X-ray absorptiometry scanner use type', specifying other text. The type of scanner used for dual X-ray absorptiometry (DXA)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60338	C60338	Mitochondrial disease fecal elastase test indicator	Indicator of whether the participant had fecal elastase testing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20046	C20046	Mitochondrial disease current special diet affect symptom text	The free-text field to specify whether the current specialized diet affected participant's symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.